| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I foergot to add that I can swallow as good as anyone and use the Syringes to put water and juices in my mouth to swallow. They make your mouth much gooier but the taste is great for about 1 minute. Well worth it tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | Had the PEG put in and doing okay. Not too much pain and no nasea yet but has really back acid reflex. It's so bad she had to go back to the Dr. and ask for another prescription... Did anyone else have this? She had this a few days before the PEG was put in. I don't know if this is a symptom from the Chemo and Radiation or if it was a problem she had before...
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I have it. It can be from chemo, radiation, medication, vitamins, acidic foods, and vomiting, etc. and have more medications, Aciphex, to take for it. Sleeping on an incline may help prevent the acids backing up at night.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | My sister was doing okay up until yesterday. She has mucositis, a really sore raw spot on the ride side of roof of her mouth. It's about the size of a quarter and the Dr said there is not much they can do and it will only get worse. They gave her mouthwash that was suppose to numb it but it doesn't work. She can't eat anymore and has to use the feeding tube earlier than she thought. She really thought that she wouldn't need the feeding tube until much later if at all . She was doing so well and now the symptoms are starting to happen. She is also loosing her hair.....her second chemo is suppose to be on September 3rd.
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Aug 2013 Posts: 6 Member | | Member
Joined: Aug 2013 Posts: 6 | i do but i have only done 14 radiation treatments | | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | She has had 13 radiation treatments
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Aug 2013 Posts: 6 Member | | Member
Joined: Aug 2013 Posts: 6 | we are on the same schedual. my second chemo is sept 3rd also. i am very sorry that she has mucostis. I have been gargling with carafate and caphosol 4 times a day sice day 3 | | | | | Joined: Aug 2013 Posts: 6 Member | | Member
Joined: Aug 2013 Posts: 6 | also i read that gargling alot with spring water / 1 guart and 1 tablespoon baking soda and teaspon salt. is she do any health food store stuff? | | | | | Joined: Aug 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 20 | I think she started to go to the health food store to make smoothies but now she is having a hard time even sipping water....She was doing so well I think she is just surprised symptoms are starting this early....I saw her Sunday and she was so positive but this has hit her hard....I think she was surprised at the hair loss because she was told with this type of chemo that hair loss was rare......
supporting my sister age 60, SCC tongue, Stage 1-2,
peg in 8/26/13, 30 rads w/ 3x chemo
begin 8/12/13, end 9/30/13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | What type of chemo is she getting?
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ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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