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Joined: Aug 2011
Posts: 596
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 596
Dear Christine,

I still think fondly of you and wonder how you are doing. I lost about a year of consistent posting/viewing on this forum due to treatment for a second round almost a year ago. Thank goodness, I just had a clear scan.

I just remember how incredibly hard you worked to keep it all together. I have to give you and all of the other caregivers out there so much credit. I often think of what it would be like if the roles were reversed, and as crazy as it may sound, I think I'd rather be the patient (if I had to chose).

My point is that I am happy to see that you are still coming back, whether it is to help others or to help yourself, or a little of both. I know how difficult all of these "firsts" can be after losing my father. As someone mentioned, you will endure them and each passing year may take the sting away, but sometimes 11 years goes by and you end up having a bad day, but you get over it.

Please keep coming back. We all love you here! I hope life is turning around for you and that you are able to take care of yourself and your kids. You need some pampering and letting others do some kind things for you.

Love in OCF,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
Hi folks, been a long time since I've posted on here. I am still here but of course as you all know Ron is gone...well actually he is in our bedroom on his nightstand! I think of him everyday and every minute of the day. I do miss him but so glad he's not in pain anymore. I wish like everybody else that I could have had 1 more day and then one more and one more...but he is at peace now. Crazy guy he was. I still talk to him and when I need help with something I ask him and he does help me figure things out and keep my head level. Thank God for my kids and family and my friends they are a big help being around. It's hard but I'm doing good! Take care everybody!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Hey Suez,

Saw you post on FB and was glad that you were ok. Thanks for checking in and we all hope that the coming days bring good things for you.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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