| | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | OP  "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Went to Peter Mac this morning, the oncologist comfirmed that all was good in his mouth and that pain would be from the extreme radiation therapy. He confirmed that the pain, nausea, fatigue etc could be from scar tissue, and from all of the radiation, long after 2 years. He checked inside his mouth and used the torch light up his nose to check the base of his tongue...all good. He said Rod was doing extremely well and that after his 3 year mark next July, he would go onto 6 monthly appts. Rod now happier and excited about getting his falsies next week......Thank you all for your love & support...Jeanna xxxx
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Feb 2011 Posts: 1 "OCF Down Under" Member | | "OCF Down Under" Member
Joined: Feb 2011 Posts: 1 | Hello Jeanna,
I to am from Australia. My husband Bruce completed treatment 31/3/10 for Tonsil Cancer. Just wondering when you say falsies I assume that's false teeth. We have been looking into implants and go to Sydney next week regarding Hyperbaric treatment. We were told that false teeth would not be an option due to radiation damage. Any information would be great.
Vicki. | | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Vicki, I am computer phobic....email me at the address on my profile, email me your home number.....Don't know how to private message you - are you on facebook? If your hubby has had all his teeth removed, and is not long out of treatment, I wouldn't consider it an option at this point. Does he have a peg? I can give you some info via medicare & free treatment,.....I was refering to false teeth, but the gums have to be in really good condition....contact me personally, will fill you in....hope all else ok xxxx
Last edited by ChristineB; 07-22-2011 05:36 PM. Reason: removed telephone number and email address
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I am so glad your hubby is doing well! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | So glad to hear that Jeanna. You must be very relieved. The side effects do tend to keep giving don't they. But the way we look at it is that Steve is alive which is wonderful, so we can deal with everything else. Hope Rod enjoys his Macca's
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Yes but do you find that any pain now the answer is "Radiotherapy!". Pain in the hands, radiotherapy. Pain in the knee, radiotherapy. Tingling in the hair, radiotherapy. Sometimes it feels like they used it as an excuse because they don't have an answer.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Jeanna - To send a private message to someone, just click on the name of the poster whose name appears to the left of their message and scroll down to where it says "Send a PM". If you want to check to see if someone is on FaceBook, you can click on "Forums" at the top of this page, scroll down to "Friends" and then just go to the last page (page numbers shown at the top right) for the latest listing of posters who are on Facebook. Or check the latest page here: http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=110335&page=27
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Happy to hear Rod is doing well!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Vicki, welcome to OCF. I am very familiar with the hyperbaric oxygen treatments (HBO). Ive done 125 of them. I love HBO!!!! It works wonders for me. Several occasions I had problems healing and did HBO and it worked, I healed.
I am in the same boat as your husband. I am not a candidate for implants or false teeth. Radiation damaged my teeth so much that they became loose and crooked. I was afraid they would just fall right out they got so bad. So I did the Marx Protocol of 20 HBO before teeth being pulled and 10 after. While I was healing from having my teeth removed, I had a recurrence and then a huge surgery to remove my lower jaw. Due to complications, I am not unable to ever get any type of working teeth. One dental specialist advised me that I may possibly be able to get a top denture for appearance only. I also suffer from trismus which makes any type of dental work nearly impossible.
If you have any questions, please feel free to ask. I hope this info has been helpful to you. Just remember we are all different and will respond to procedures and medications in our own way. What happened to me may not be anything even close to what your husband will encounter.
Best wishes to your husband with his continued recovery. Good luck with the teeth!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Jun 2008 Posts: 51 | Hello all, Vicki I am in Brisbane and I have been told I cannot have "falsies"either because of the Radaiation damage and any surgery could cause necrosis??? and it could be fatal, I get so confused sometimes, I would love to have my previouslly nice straight white teeth back again but I guess it just aint gunna happen
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
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