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#172153 10-06-2013 03:38 PM
Joined: Aug 2011
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ngk Offline OP
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Next week starts week six and ive been very blessed with minimal symptoms. However today woke up with mouth sores frown I'm thankful tho bec they could have appeared earlier. I tried eating an avocado last night and wondering if that caused a reaction??? Or just coincidence? Ive been faithfully rinsing with baking soda and salt from the start. sometimes i use biotene, use the waterpik and rinse with manuka honey. So now I'm a bit afraid to try new things and wish I had not tried the avocado until after the few weeks post tx. (I have a PEG)
Thanks......


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
ngk #172154 10-06-2013 04:09 PM
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Anything is possible, but it's probably 100% likely that head and neck cancer patients will have mucostis, that can lead to inflammation, ulcers, fom radiation anyway. With ulcers, you have to be careful with bacteria entering the blood steam through them, so let the doctor know, and may be issued proper medication to treat, and can be associated with a bacterial, viral or a fungal infection. Also, be careful with hot, spices, sharp textured food that can irritate the mouth, cause cuts in the mouth. Do you have Magic Mouthwash to rinse with? I heard of some with good results to help prevent mucocitis with GelX. I used aloe vera juice to rinse with too, which helps in healing. I hope this helps.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






ngk #172155 10-06-2013 04:38 PM
Joined: Aug 2011
Posts: 269
ngk Offline OP
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Thanks Paul, I do have the magic mouthwash and will talk to the dr tmw too.


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
ngk #172158 10-06-2013 05:36 PM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Glutamine powder mxed with warer to rinse nse with too, swallow, helps repair tissue, and with neuropathy.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






ngk #172160 10-06-2013 07:07 PM
Joined: Aug 2011
Posts: 269
ngk Offline OP
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Posts: 269
Oh yes I did get the glutasolve. I can't swallow it tho, or the Manuka honey, if I do I will immediately vomit. But I will rinse tonight. Thanks for the suggestion. smile


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
ngk #172178 10-07-2013 05:00 AM
Joined: Mar 2013
Posts: 421
Likes: 1
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As Paul mentioned, Glutamine works wonders as does Magic Mouthwash. I added the Glutamine to the baking soda and salt rinse.

I had a couple of different Magic Mouthwash formulas. One was a swish and spit and the the other was swish and swallow. Both had lidocane in it and really helped with mouth pain.

You've done incredibly well thus far. Just keep being pro-active with symptom control.

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
ngk #172194 10-07-2013 10:56 AM
Joined: Jan 2006
Posts: 756
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"Above & Beyond" Member (500+ posts)
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Be careful of what you eat as your mouth will be very sensitive for a while because of the radiation. I was very sensitive to anything acidic, spicy or hot, and often they would cause mouth sores months after my treatment ended.

The advice from others regarding the various rinses do help, but check with your doctor first. Using a waterpik is a good idea, but keep the water pressure on low.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
ngk #172203 10-07-2013 12:51 PM
Joined: Aug 2011
Posts: 269
ngk Offline OP
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Posts: 269
Thanks T and Susan smile


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
ngk #172238 10-08-2013 09:05 AM
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
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Posts: 1,406
Nancy, the only way I was able to take nutrition (liquid) by mouth during radiation was by first holding a bunch of viscious lidocaine in my mouth for up to ten minutes. It helped... somewhat. No one mentioned magic mouthwash to me, but I have a feeling that between the lido and other other stuff I was swishing I was getting the same effect.

Oh and my RO told me emphatically to do everything I could to keep from vomiting, since the acids in the stomach could play havoc with the throat tissues damaged by radiation.

Hang in there!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
ngk #172263 10-08-2013 03:43 PM
Joined: Aug 2011
Posts: 269
ngk Offline OP
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Thanks david. My mouth sores hurt for 2 days and today, they are still there , but don't hurt! I have no idea what the future holds, (i hope not pain) but I will keep what you suggested in mind. I did gargle will glutamine, wondering it that helped. Who knows, but I consider myself beyond blessed, and holding on tight that everything stays status quo... Or gets better. 4 more treatments to go...(and post tx weeks)
And thanks for the tip about not vomiting. After what my throat felt like the last time i did, i figured i was gonna avoid that at all cost. My RO doesn't tell me anything, and that's not an exaggeration. But he is supposed to be one of the top RO's in the west, so, thankful he set up the plan. I get all my info and support through OCF! Again, beyond blessed. I could not have made it without everyone here, smile


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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