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#149479 05-12-2012 02:19 PM
Joined: May 2012
Posts: 31
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: May 2012
Posts: 31
and today is Saturday, and I don't have to go for amifostine or rads....what a perfect day smile.

So far, I'm eating pretty much whatever I want (no Mexican, however...LOL)...but my throat isn't sore yet, and I have a little saliva left.

My taste finally got a little perverted just yesterday. In the morning water was wonderful, but noon it tasted like I'd added soda...Oh well, food still tastes good.

One strange thing tho, I've gotten so I hate the smell of the oncologist's office....and I can't stand the smell of the rubber on the stethescope...I'm hearing that is because my sense of smell is now heightened. Now I know how my dog feels...

p


Nasopharyngeal Carcinoma Stage III T1N2M0, diagnosed March, 2012...Treatments started April 24, 2012, finished 8/28/12.
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
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"OCF Down Under"
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Posts: 638
laugh

I can't get into a lift where someone is wearing Vanilla based perfume. And I wasn't even the one that suffered the treatment! I also never knew how many room deodorisers have a vanilla base in them.

Whilst I think there is either a heightened or changed sense of smell associated with the treatment, I also think we start associating smells we never noticed before with the whole miserable experience.

The aversion to vanilla is common to both Alex and I and I believe it is because we associate it with the worst of Alex's treatment when he was undergoing overnight pump feeds. We could only get "vanilla flavoured" feeds (why do the companies put such strong smells into feeds you can't taste and when appetite doesn't matter?). Occasionally the pump would disconnect, spilling the formula into the bed. The cat was very appreciative and it was often the sound of her lapping that actually woke us up before the smell and the "wet patch" did.

Great news about your reaction to treatment so far! That's 3 less weeks you have to worry about side effects.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

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Congrats on getting through it so far!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2007
Posts: 595
"Above & Beyond" Member (500+ posts)
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Posts: 595
Keep the great attitude as you will need it in the weeks to come in your WAR. but soon it will behind you!!! Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!

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