| Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jun 2013 Posts: 262 | Did anyone's voice become nasal following tonsillectomy? Was it a permanent change? Does radiation mess with your voice too?
I sound like Lily Tomlin's Ernestine the Operator, for those old enough to know who that is. My voice and diction were crystal clear before. I make my living talking so this is no small matter to me.
I didn't ask my surgeon about my voice, but he did tell me that I'll soon stop feeling like food and drink are heading up my nose. Maybe that's connected. I have no idea what is going on anatomically here, but my tonsillectomy created quite an excavation site (23-gram tumor plus retro node).
I'm embarrassed to fret about something so frivolous when others here have endured far greater losses, and I know I'll have more to adjust to post-radiation. I just feel very sad about how unpleasant my voice has become.
53 T3N2aM0 HPV+ 5/26/13 discovered painless superball-sized lymph node in neck 6/26/13 DX SCC R palatine tonsil 7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes 9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses 10/16/13 Treatment ends Dec 13 Ulcer appears at surgery site Jan 17 Biopsy -- no cancer! Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | I'm sorry to hear that, mamacita. I noted a change in my voice as well but it went the other way: it got deeper. But this happened more than a year after my treatment. So I'm figuring that changes can happen progressively. Maybe your voice will return to all or close to what it was before all this mess. You might also consider speech therapy, which many people here including myself have found helpful.
All in all I'd say hang on and be patient. Your surgery was barely a few weeks ago and you've still got a ton of healing to do. Mainly, congrats on getting through it! You're on the road now.
Oh and you don't say if you're having further treatment or not. That can certainly affect voice among other things.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | It could also be that if you're in pain you are using more head voice. I have no doubt it can affect your vocal cords depending on where the radiation is aimed. I can tell you my voice is normal. But I didn't lose it either during treatment. My radiation painted my nodes but was aimed at my tongue primarily. Hugs girl.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jun 2013 Posts: 262 | Thanks for the reassurance David and Cheryl, I will work on the patience thing My tonsils rarely hurt now, but I think I know what you mean by "head voice" and I may be doing that. I see the SLP again around the 23rd and will ask her if I'm not closer to normal by then. She has me on a puree diet until then for swallowing issues and I hope she releases me for solid food so I can have even one week of "memory meals" before radiation starts interfering with my eating!
53 T3N2aM0 HPV+ 5/26/13 discovered painless superball-sized lymph node in neck 6/26/13 DX SCC R palatine tonsil 7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes 9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses 10/16/13 Treatment ends Dec 13 Ulcer appears at surgery site Jan 17 Biopsy -- no cancer! Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | It's only natural that our voices change to a degree with OC. Surgeries, biopsies and treatments alter the physical structure of our mouths, throats and other structures (I was surprised at the size of the chunks of flesh they took out of my throat!)
I also make my living with my voice. I speak on the phone all day in my job. I'm also a professional musician (guitar/vocals). When I met with my team at Hopkins, one of my major concerns was being able to perform again. While I don't make a living performing full time anymore, it still is/was a rather substantial part of my income. I know my RO tailored my rad field to spare my larynx and vocal chords. Despite that, I had no voice by the end of treatment. There were a period of a couple of weeks I was at a whisper.
At 15 weeks post Tx I have my speaking voice and it sounds normal. However, by the end of the day, I'm hoarse and my voice is tired. Lack of saliva complicates this as well. Unfortunately, my singing voice has definitely been compromised, at least for now. I have my lower register but I sound hoarse. My upper registers are not there yet and I lack control. My last scope showed that my throat has narrowed due to scar tissue from the surgeries and biopsies. My ENT/Surgeon feels we can correct this with therapy to break up the scar tissue.
While I feel my voice will return eventually, it may be up to a year before I know the end result and it more than likely will be different in timbre and range.
Patience and work will be the key in this instance I'm afraid. As much as it pains me, it will be a year or more before I can return to the stage.
Positive thoughts and prayers
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | I'm another with a deeper voice. I have a ring of scar tissue (feels like it's just below my Adam's apple) that I suspect is the culprit.
In my case (and I suspect many other's as well) the very thick saliva that my surviving salivary glands produce likes to hang on that scar tissue. And it usually hangs below. Sometimes, it annoys the living **** out of me, because the thick saliva seems to cling to it and the surrounding tissue, and when I try to cough it up, my cough just passes over it. Drives me nutz, sometimes.
And yes, thank you very much, Monsieur would very much enjoy a slice of Fromage to accompany that whine... (he said with a friendly grin...)
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Radiation can also damage, paralyze the vocal cord or flap. Mine on the left side has paralysis, but not enough for a collagen injection.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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