| Joined: Feb 2012 Posts: 117 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Feb 2012 Posts: 117 | Some of you guys have really gotten to know me thru all of this. Well the reason I eat sleep breath and am fighting to get thru this is because I love and do theater. Which brings me to this concern- with having less saliva will singing still be a possibility? Right now I can barely talk let alone sing because my mouth is so raw. But I was wondering what your experiences were.
Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | John, your mouth will definitely get better. I recall hardly being able to swallow water for 2 months, and for at least a month all I could do was whisper. And even that was tough. So hang in there. Eventually you'll be back on Broadway!
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Aug 2011 Posts: 78 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2011 Posts: 78 | I have a 2.5 year old, and had so many issues initially reading & singing to her. I am now pretty good about 5 months out... Although, I'm sure she'll be old enough soon to tell me how bad my singing is & it will stop again. Of course, the quality of my singing was poor long before cancer treatment!!
Sally, 38 years old T1N0M0 Left Tongue Lesion, Moderately Differentiated 10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011 Scheduled Partial Glossectomy & Neck Dissection 9-17-11
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Everything you are experiencing right now is temporary. While going thru treatments the future can look pretty bleak. We have had several musicians on the forum who have gone on to have successful careers after rads.
Towards the end many of us have lost our voices completely. I couldnt even whisper for about 3 weeks. I got very good at hand gestures and scribbling on a dry erase board. Losing your voice can be another temporary side effect, hope you dont have this issue.
You are past the half way point now. I know its not easy and it can be scary not knowing what to expect while feeling lousy. Heres a tip to help keep track of your progress and also to help you see your accomplishments. I would use holidays as goals for myself. For instance, 4th of July is coming up and you will have finished everything by then. You could plan to be well enough to attend a 4th of July celebration. By Labor Day you will be so much better that all of this will be just a memory. I finished rads in September and planned on having a huge Thanksgiving with tons of people and food. I know its far off but by Thanksgiving you will be so much better. You should be able to eat almost everything and taste it too. Its going to be the very best Thanksgiving you have ever experienced! You could even be back to doing your theater work again by then.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | I am a school music teacher--voice, choir, piano, general music. I was very worried about my singing voice. It was written into my treatment plan to do IMRT to my lower neck. This was because there was a large scar from surgery (gone now!) over my larynx. Usually they place the scar below but because my neck was so thin (yeah, it is actually more muscular now because I have done so much exercising I guess) the surgeon had to put the incision there. Anyway, they had to radiate it. Thus they did IMRT to protect my larynx beneath it.
I had my larynx scoped recently because I was having hoarseness only for singing (videostroboscopy) My larynx looked really good, untouched by radiation. My thyroid BTW got hit and I am hypothyroid and have to take meds. The ENT, who specializes in voice, especially singing issues, said he thought some speech therapy would help, and that the hoarseness was because of the muscles surrounding the larynx not functioning correctly. I guess that describes it. Anyway, the exercises work very well. I think I was getting into some bad habits about singing, using muscles I did not need to use--extrinsic laryngeal muscles--instead of relying on breathing technique. Something like that. Anyway, when I practice them in the mornings, I'm good all day. The speech pathologist told me that good technique can overcome my problems.
In short, my voice does not quite function the same, but not really worse either. I remember when I got out of treatment I tried my singing voice out & it was horrible. I was missing huge chunks of pitches. It is not at all like that now. I had someone tell me the other day when I was just messing around singing a tune how good my voice sounded, which did a world of good for my psyche.
So it is too early for you to panic as far as singing goes.
Best, Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | My wife has a regular restaurant customer that had his OC treatment 15 years ago and carries a water bottle on a cord around his neck and he still sings in his chuch choir. Remember we all can be different but the rad he received 15 years ago created far worse dry mouth issues than the IMRT of today.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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