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Joined: Jul 2012
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claw Offline OP
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Joined: Jul 2012
Posts: 5
I just left my husband a while ago, hooked up to his first of 3 chemo treatments. Very nervous cuz of unknowns - side effects, reactions, etc. It just felt so wrong to leave him there, but he insisted cuz he planned to go to sleep for the 4-5 hours he would be there! :-) I know we'll get thru, just wish it was next week already!
We changed chemo docs last week cuz he did NOT feel comfortable with the other practice. Love the new doc, philosophies, practice and the fact that he trained at Moffitt. But, he likes 3x cisplatin instead of 7x; which means stronger dosage. That's a little scary.
On the positive side, we're 1/3 way thru chemo and 1/7 thru rad - YAY!!


Husband Dx SCC left tonsil 6/2012 - T2/N2b, stg 4A. 48 y/o, never smoked, occasional drinker.
Both tonsils removed + neck dissection, 6/28/12. 18 nodes removed (2 pos).
7x5 RAD, started 7/30 and 3x cisplatin, started 8/3. Port inserted 8/2.
Still deciding: PEG?
Joined: May 2012
Posts: 114
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Joined: May 2012
Posts: 114
Hang in there, it's not an easy venture but you guys will be ok. Just keep coming here for info and support and you'll be ahead of the game. Your attitude as a caregiver is great, with your help your husband is in great hands. Glad he found a doctor he is comfortable with, that will make a big difference.

My mom did the 6 weeks of chemo as opposed to the 3 so I can't speak to the side effects on that. Many people here have though, so I'm sure they will be able to help.

Best of luck as you both move forward!


Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
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Everyone here remembers their first chemo/rad day. Most have the chemo early and then the 1st Rad later in the same day. Moffitt was an hour away from my home so that 1st day we were up at 4am and we didn't get home until after 9pm emotionally and physically drained!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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"OCF Canuck"
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Chemo for me wasn't too bad and I had the big everyone handles it differently - make sure he takes his aniemetics - hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2012
Posts: 114
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Joined: May 2012
Posts: 114
Just wanted to check in and see how your husband has done since his first chemo last week. Thinking of you both...


Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12

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