| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | It was either a touch of a stomach bug or a side effect of a new drug (Robinul) I've been taking to reduce my mucous and excessive saliva, but around midnight I had amazingly painful stomach contractions and esophegeal cramps trying to throw up. But just as my cricophyaryngeal muscles especially the old musculus constrictor pharyngis inferior & epiglottis have been adamant about not letting food or water down my throat to my stomach (instead only going to the lungs), they are just as stubborn about letting anything back up ! So from midnight to 3 am, I am hacking away, bent over the toilet bowl while only mucous and maybe one little sip of stomach contents comes up. The noise was horrific with the empty retching and then sharp intake as I struggled to breathe until the mucous plus came out and my wife was frantic about calling 911. But we both know better than trying to get real help on PEG/swallowing issues on a Saturday night in an ER. I'd try and relax the muscles with a heating pad and it helped somewhat but that urge to purge would not leave. Then it dawns on me: hook up the feeding tube connector insert to my PEG button valve and just leave the clamp open. YES. Streams of vile looking stomach contents yearning to be free burst forth. Ah - relief. So, my fellow Pegsters: if gulp comes to choke: just open up your connecting tube and let her rip. An Alternative to Vomiting plus no nasty aftertaste. Charm
Last edited by Charm2017; 06-10-2012 11:43 AM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Wow Charm...that is just unbelievable but so glad you found a solution to the problem.
Vomiting is no fun but not being able to vomit is just horrific...so sorry but I bet someone else will benefit from your experience.
Hope you are feeling better,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Charm, I am so sorry to read of your struggles in the middle of the night! I know how bad you must have felt. I cant imagine not being able to throw up. It must have been terrible!!!
Ive been sick off and on for the past 3 years. I have found one of the benefits of having a J/G tube is that I can easily purge the offending stomach irritants. I learned this while in the hospital and the PEG tube had become dislodged and embedded in my abdominal wall. My J/G tube came with a bag which holds fluids. I can hook this up to the one side of my tube and it will drain all the contents that is making me ill. I know it sounds disgusting but this bag has helped me many times over the past few years. Once the gunk is out of my stomach I instantly feel better. Anyone who has a J/G tube should have the plastic bag that goes with it.
Be careful with getting dehydrated. Everything that comes out needs to be replaced as soon as you can handle it.
Sure hope you are feeling alot better now!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | I was intrigued by the title of your post so clicked on it and was at first horrified by your experience. The horror turned to laughter at your turn of phrase and continued humour around what must have been a frightening and painful experience. This definitely needs to be added to the list of good things about PEGs that someone (you or Christine?) posted a couple of years back.
Now I don't know if I should offer sympathy or say something smart arse.
Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | YACK!!!!!! Sorry you went through this but great solution!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | Charm, wow that sounds horrible, but again your experience turns into a valuable tip for others. Thanks for sharing and hope you are feeling much better. It's a constant learning isn't it ?
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Charm,
Thanks, I just finished my breakfast drink as I read your post! Now get some much need rest.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Oh My Goodness, Charm! How awesome that you figured out what to do and were able to get relief! Hope you have gotten some needed rest. I just wonder if anyone in the emergency room would have known what to do even if you had gone there. What you and Christine have posted really should be included as valuable instructions for anyone using a PEG. Or maybe demonstrated on a youtube video? (Simulated, of course - I would not like to see anyone in such discomfort in an actual situation).
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | Wow that is simply amazing! And yes Charm you sure do have a way of explaining things!
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | |
Forums23 Topics18,168 Posts196,924 Members13,103 | Most Online458 Jan 16th, 2020 | | | |