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#21591 11-27-2006 05:53 AM
Joined: Nov 2006
Posts: 3
Member
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Member

Joined: Nov 2006
Posts: 3
I get 5th treatment today 25 total IRMT I think.
for soft tissue plasmacytoma.
Like to talk with anyone thats gone thru this .
be glad to call u
best time to call & phone #
thanks don


don meily
#21592 11-27-2006 07:38 AM
Joined: Jul 2006
Posts: 446
"OCF Canuck"
Platinum Member (300+ posts)
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"OCF Canuck"
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 446
Hi Don,
Welcome. I'm glad you found this forum now, early in your treatment, You'll have a lot of questions along the way, and the answers are here.

Where are you getting the radiaiton, one side, or both? There are a number of not so much fun side effects that you'll start seeing fairly soon; loss of taste, thickening of your saliva, mucositis, burns, trouble swallowing, etc.

It's rough, and there's no point sugarcoating it, but you can get through it.

I had 17 hours of surgery in June to remove my left mandible and reconstructing it with bone from my leg, and tissue from my arm. 6 weeks later I started a course of 30 IMRT treatments. Now, I'm recovering from the ordeal.

If you want to talk, send me PM off the forum, and We'll hook up with phone numbers
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06

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