#91057 03-03-2009 01:46 PM | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I had the first appointment with the prosthodontist today. We only removed a crown that will be replaced and did a cleaning today. I did discover a benefit from having my neck sliced open twice. When he put the big needle in to numb my gum, I did not feel the "big stick" that I normally feel. My jaws are sore now from having them stretched so well for me today which I told him was probably good for them.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I have decided that this disease is like the old joke where the man says that his head hurts and the other man stomps on his foot to make him forget about his head ache. I have been dealing with pain issues in my right neck and shoulder with shooting pain into my elbow that is waking me at night. I have scheduled therapy to get this fixed that starts next week. After the trip to the dentist yesterday, having my mouth stretched wide open while he drilled, and drilled, and drilled trying to remove that crown today my neck and jaw are so sore that my shoulder and arm don't hurt so bad. Since my pectoral muscle is now in my mouth I had muscle twitching last night in my upper chest that was interesting also. And speech is not recommended today - it hurts and I am not very clear since I am all swollen again. I hope that I did not go to the dentist too soon after surgery, but my ENT did say last appointment that she wanted me to get some teeth. Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | like the old joke where the man says that his head hurts and the other man stomps on his foot to make him forget about his head ache.
Perfectly said. There were many times that I hurt so bad and then something else would crop up and be worse than what was hurting before. Just when you thought things couldn't get any worse.....
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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