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#150826 06-13-2012 10:23 PM
Joined: May 2010
Posts: 638
klo Offline OP
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After lurking on these boards almost exactly 2 years, Alex has finally posted!! A pearl of wisdom for all those who come after? A word of comfort for those currently going through it? Or maybe comiserations for those similarly determined to move forward?

No!

A complaint that the survey didn't have metric measurements and he had to recalculate his height and weight into feet, inches and pounds!!

I say again. Bloody cheek!! smile His idea of humour.

So the OsbLow team now has a 100% participation in the survey at least


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
klo #150838 06-14-2012 03:55 AM
Joined: Nov 2006
Posts: 2,671
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Yay! Hurray for Karen's Love of Life! and Welcome, Alex!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



klo #150842 06-14-2012 05:39 AM
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:))))))


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
klo #150869 06-14-2012 11:53 AM
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Administrator, Director of Patient Support Services
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I was a bit confused by his post. Thanks for the explanation! I am also very thankful for both of you completing the survey. It is very important to future oral cancer patients.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #150870 06-14-2012 11:56 AM
Joined: Mar 2008
Posts: 3,082
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Klo

As if any of us were surprised that Alex is a cheeky fellow.
(for some reasons, my British friends all call me a cheeky bastard so it must be a compliment right?)
Good for him
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
klo #150929 06-16-2012 03:52 AM
Joined: May 2010
Posts: 638
klo Offline OP
"OCF Down Under"
"Above & Beyond" Member (500+ posts)
OP Offline
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Posts: 638
Charm
I would probably use slightly stronger language to compliment you smile
Karen


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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