| Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2012 Posts: 58 | Wasn't sure where to ask this but my dentist gave me a Mint 1.1% Neutral Fluoride to use in my trays. I don't know if it's the mint or what but something about it I just can't take. It kinda feels like burning or just irritating. Is it just because my mouth is so raw? Has anyone used a different flavor that has worked better for them? I know I need to do this so I need it to be somewhat pleasant. Right?! lol Thanks all!
MissB
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV- T3 N1 M0 SCC Dx 11-10-11 11-23-11 Left Hemiglossectomy 11-30-11 Modified Radical Neck Dissection 01-25-12 Removed another spot on BOT, skin graft (left thigh) 38 RADS Tx Finished April 13, 2012 Fall 2014 - HBOT due to wisdom teeth extraction post radiation
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi... the flouride can be VERY irritating. I know they say take it at night, before bed, but after rads ( I did it during but only until it became too painful then I stopped), I eased into it doing it every second night at first, then nightly and sometimes if it's too irritating I switch to days for a bit that way after an hour I can rinse. Which you wouldn't necessarily do if you do it before bed. There are some that are more neutral than others, and mint, particularly if it's strong hurts. Ask him to recommend another brand. I had my recent check up almost one year out and the dental oncologist said my mouth was great for all it had been through - but I don't eat sugar or processed foods and I water pik twice a day to clean along the gum line... I think all of this helps... good luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 | Try the unflavoured gel - that's what I use. It doesn't bother me too much..I think it's the actual trays that bug me sometimes. I sometimes use them before bed, but switch to other times in the day (like Cheryl), as I like to drink water and line my mouth with Oral Balance at night to lessen the dreaded morning dry mouth.
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey - another Canuck! Hello!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 | Hi Cheryl - I've been following you eh?
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2012 Posts: 58 | Thanks Ladies. I'll be giving my dentist a call:)
MissB
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV- T3 N1 M0 SCC Dx 11-10-11 11-23-11 Left Hemiglossectomy 11-30-11 Modified Radical Neck Dissection 01-25-12 Removed another spot on BOT, skin graft (left thigh) 38 RADS Tx Finished April 13, 2012 Fall 2014 - HBOT due to wisdom teeth extraction post radiation
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi shauneen!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2012 Posts: 8 Member | Member Joined: Feb 2012 Posts: 8 | Hi -- I also use floride trays. I had to stop during my radiation and for some time after because my mouth was so sore and raw. But now that I have healed, I continue to use them and the mint doesn't bother me anymore. There are many other flavors though, you should ask your dentist. | | |
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