Previous Thread
Next Thread
Print Thread
#157 07-13-2002 11:16 AM
Joined: Apr 2002
Posts: 52
marliz Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Apr 2002
Posts: 52
If anyone is interested in my experience getting this I will gladly share via e-mail. I tried to write it here and got kicked off twice so I gave up.


Marlene
#158 07-13-2002 11:40 AM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
Marliz, try again. The site was weird earlier, but is working now, and I am sure your experience would be of interest to many people.
Joanna

#159 07-13-2002 12:05 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
I checked with our service provider, and the server has had no problems, so it must be related to your internet service provider that you sign on with. I too occassionally get dumped by my service provider AOL. It really pisses me off after spending 20 min. writing a response. Anyway, now I always write my replys in MS Word, since the board has no spelling checker and I'm terrible. When I'm done, I copy and paste it on the board. For short two liners I don't do this, but if you've read my replys they kinda ramble on and on...If you are having troubles you might try this.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#160 07-14-2002 08:09 AM
Joined: Apr 2002
Posts: 52
marliz Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Apr 2002
Posts: 52
Thank you both for your encouragement. I also have AOL, and am sure the problem is on my end as it's been happening to me a lot. It really makes me mad as I'm not a typist and my spelling also sucks. I do not understand what MS word is as I'm not that familiar with my computer. I will try to make it brief.


Marlene
#161 07-14-2002 12:49 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
MS Word is the most common word processing program, but I'm sure you have some program on your computer for wrting letters etc. Just use it, and then copy and paste the posting into the message board.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#162 07-14-2002 11:17 PM
Joined: Apr 2002
Posts: 52
marliz Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Apr 2002
Posts: 52
#4 5AM!! After I had 35 IMRT's, I went to the best cancer hosp. in western Pa. UPMC in Pittsburgh, for my 1wk. follow up exam and found myself in their OR that Mon.7AM. I woke up with a feeding tube in my nose, 10 catheters sticking out my neck below my chin, a treachea, an IV and I could not talk. I had one HDR brachytherapy that PM, they take each catheter and hook it up to a hose on this machine and leave the room. The machine makes noises and I can feel vibes as it shoots the RAD up the tube,it does not hurt and lasts about 10 min.I had 4 more treatments in the next 2 days and was back in OR getting the catheters out, Wed PM. I had a cap put on my treachea and could finally talk Thurs. AM and went home Fri. AM with a hole in my throat that is healing nicely. I don't feel any different then I did after the IMRT's except I can talk now and have the hole in throat. I had looked up my the surgeons profile and found that he had done his fellowship at one of the 2 best cancer hosp. in the USA, in Tx. Their treatment plan for my tongue base squamous cell cancer stage 2 or 3 was no surgery,35 IMRT's to shrink the tumors and then he goes in for real kill with this to get any remaining cancer cells. He said a tumor is like an octopus with roots flaring out that have cancer cells that have to be killed. If anyone has any questions please feel free to contact me.


Marlene
#163 07-20-2002 12:39 AM
Joined: Apr 2002
Posts: 19
Eli Offline
Member
Offline
Member

Joined: Apr 2002
Posts: 19
Hi Marliz, what is IMRT"S? Is you base of tongue tumor a primary or reoccurence? My sister has a base of tongue tumor, it a reoccurence from a primary on the side of her tongue, I think. Thanks and feel better. :-)

#164 07-21-2002 11:51 AM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
Eli, if you use the search engine function of this web site and enter IMRT into it, it will take you to pages that explain what it is.......


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5