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#150562 06-09-2012 05:03 AM
Joined: Nov 2006
Posts: 2,671
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
I check the Oral Cancer News regularly and would encourage others to do so for the latest, accurate research information on Oral Cancer. Two that especially caught my eye were:

1) �Cannabis chewing gum targets oral side effects�. How I wish this had been available years ago when my son was in Rad Tx. Good to know that ways are being developed to help OC survivors survive the tortures of radiation.

2) �Throat cancer survivors sing to give thanks, encourage others�.

One of the songs mentioned in this story about the North Texas Laryngectomy Choir �has found new meaning for me as I think of all that OCF has done for me, for my son and so many others:

You are my sunshine, my only sunshine
You make me happy, when skies are blue
You�ll never know dear how much I love you
Please don�t take my sunshine away.

Thank You, OCF and all the awesome people here, you really are my sunshine! smile


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Sep 2006
Posts: 8,311
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Ok I got to get me some of that gum. ERIC were are you????


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
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I was impressed by the OCF newsfeed article about dental oncology. Looks like Sloan Kettering in NY is on the ball and realizes the importance of special dental needs for OC patients.

Here is the link to the newsfeed.

OCF Newsfeed


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
davidcpa #150571 06-09-2012 07:32 AM
Joined: Feb 2011
Posts: 117
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Joined: Feb 2011
Posts: 117
David, you're right...it doesn't say how/where to get the gum, does it ? I'm wondering if I could even chew gum now with dentures...I haven't tried.

p.s. (I know where Eric is......he's at my house !! tomorrow is the FIRST EVER Chicago OCF walk)


DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
Anne-Marie #150581 06-09-2012 09:23 AM
Joined: May 2012
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Hi Ingrid....I just googled, found the link to the manufacturer, copied below. It's an interesting article, will be looking into this product more as my husband heads into radiation in a few weeks. Ana

http://sanammad.com/index.html

P.S. I wish I could be with you and Eric on the walk tomorrow, especially as ya'll are just down the road. Instead, I'll be taking Vince for his neulasta shot (love whoever invented that stuff!) & giving him his home IV as this is a particularly rough chemo week. All 4 of us will be there next year, stronger than ever...:) Hugs to both of you and thank you for walking for all of us!


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
AnaD #150584 06-09-2012 11:48 AM
Joined: Feb 2011
Posts: 117
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Ana, thanks for the info. Interesting; I have emailed them for more info. Sorry about the walk not working out; you will be with us in spirit. Best Wishes to hubby also.


DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.

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