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#140721 09-28-2011 01:37 PM
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Administrator, Director of Patient Support Services
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Here is something fun we can help Brian do. OCF needs to replace the slogan "MAKE ORAL CANCER HISTORY". Im certain we have some creative members who can come up with another slogan that is equally as catchy. Please post your ideas on this thread.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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From the top of my head...

"Changing the Face of Oral Cancer"(has that one been done?!)

"Changing the Face of Oral Cancer through Information, Activism and Support"

"Providing the Latest Information and a Voice to Oral Cancer Patients, Survivors, and Caregivers"

"Dedicated to Being the Eyes, Ears, and Voice of Oral Cancer Patients and Survivors."

"Information. Activism. Support."

I'll keep thinking...

Sandy




Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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Will kick it off but will give it some more thought. Starting with these 3;
Make Oral Cancer Go Away
Ban Oral Cancer
Banish Oral Cancer
whistle


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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I already sent a suggestion to brian... Take a bite out of oral cancer... not sure if it's been done.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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BTW...Would it be acceptable to take orders for shirts from my FB friends? I'd like to buy some for my family. But, so many people became aware of oral cancer through my posts about J. Some of them might want to help by buying a t-shirt.

Let me apologize in advance in case these are just too silly...

"Mouth Off to Oral Cancer"
"Chew Out Oral Cancer"
"Make Oral Cancer Eat It"
"Give Oral Cancer the Brush Off"
"Silence Oral Cancer"




Last edited by Sandy177; 09-28-2011 08:44 PM.

Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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...and about the shirts...
Can they be re-screened to attribute the slogan to MD Anderson...Would it be legally acceptable? Would it be worth the expense? Then, they wouldn't have to be discounted/destroyed/given away. I've screen printed shirts before. If we get a screen made, some ink and some volunteers together...it would be very inexpensive and quick to do.

I'd think that MD Anderson would love the free publicity.

Last edited by Sandy177; 09-28-2011 09:17 PM.

Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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Can't reinvent the deal, we have been 90 days into it this far, and it has been struck to allow our wrist bands to survive. If I was going to add another screen to the existing shirts, it would likely say something in a wording that I couldn't post here about the mothers of the SOB's that work in their legal department that brought all this up after a decade of mutual cooperation. Places where the sun doesn't shine might be mentioned as well�.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Let's stick Oral Cancer where the sun don't shine??

You might have something there, Brian!


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Dammit!! I wasn't going to think anymore and now this!!! Great, you turned my brain on and I'll be thinking up slogans all night. I don't even have access to my stash to get really creative...which is OK because I don't have a lot of junk food in the house either...



Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I like your idea much better than mine, Brian! I'm sure plenty of folks would love to help screen some of your choice words on 'em. Grrrrr...




Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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