| | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | I am getting ready to be at MD Anderson in Houston on Wednesday the 14th. I have never been. They may evaluate me and send me for treatment someplace else, but if I stay in Houston for the duration (2-3 months) I was wondering where I should look to stay. Do they have places for patients? My wife will be going back and forth with our 14 year old son. Any other tips from MDA alums would help. I am flying a little blind here.
Thanks in advance.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | There is a hotel directly attached to the hospital. It is too expensive for a protracted treatment stay, (not for the rich that travel there from all over the world, but for us mere mortals) but for a couple of days of evaluation you can stay there and walk across the catwalk right into the hospital, and it has a decent eating place in it as well.
If you are going to be there for some protracted time there is a church group that owns a ton of condos all around MDACC. They are furnished with everything you will ever need. Modest to be sure, but highly affordable by the week or month. I stayed in one for 4 months. Ask the MDACC staff about them if you are going to be there for awhile. If you have dead time while you are waiting between appointments, I can offer you other things that you should do there. We have a couple of survivors that live in Houston, and I can also hook you up with them if you need more information.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Aishel House is for Jewish patients,but as Brian mentioned there are other organizations there. If you have any problems with referals from Anderson to these places the Lazaroffs could help direct you. They are very warm and dedicated. www.AishelHouse.org Chabad at Texas Medical Center 1955 University Blvd. Houston, TX 77030 USA 713-522-2004 www.Chabadtmc.org Rabbi Eliezer Lazaroff, Executive Director Rabbi Yitzchok Schmukler, Associate Director Mrs. Rochel Lazaroff, Volunteer Coordinator
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kelly, also check out this thread for some other useful links to help when traveling for medical reasons. I posted several links about discounted air travel. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=118755&page=1
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | Kelly,
I am a little late reading this but my home is always open. For free. I am 30 minutes from MD Anderson. I have extra bedrooms.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Theresa - you're awesome! just saying!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
