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#204 08-07-2002 12:21 PM
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PJ Offline OP
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My PC just called. got the wet read from my CT. He said it shows a 1-2cm mass at the base of the tongue, a very enlarged lymph gland on the left of my neck and a smaller enlarged one on the right. He said sometimes they can definitely say "cancer" from the CT. On mine they just call it a mass and some lingo meaning can't tell. I pick up my films and the long report Monday on the way to the Head and Neck Clinic in Houston. You guys who have been through this, could they tell from your CT that it definitely was cancer?

#205 08-07-2002 03:30 PM
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No one can diagnose cancer without a biopsy, you can


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#206 08-07-2002 05:02 PM
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I am sending positive thoughts and energy your way and wish you all the best.

#207 08-08-2002 01:03 AM
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I agree with Brian, but just didn`t want to be wrong about biopsies and stuff, my cancer started out as a mass at base of tongue also..........4 yrs ago.....stage 4...and I`m still here......once you know what`s going on and the plan of attack, it helps........for me the worst part was the waiting, once I had a plan of attack, I knew what I had to do.........hang in there, easier said than done.........positive thoughts are with you!!!!!

#208 08-08-2002 04:23 AM
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Pj.........I think we all agree that waiting for results is the worst thing possible because we tend to imagine the worst. After hearing the plan of attack things do seem to get better although there may still be significate anxiety. That is pretty normal. Hope for the best! Sending postive thoughts your way.....keep us posted. SIncerely, Donna


SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!
#209 08-08-2002 08:09 AM
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PJ

It's true that waiting for the final diagnosis stinks....but once they know what it is for sure, then they can do something about it. That's one thing to keep in mind.

Keep strong through this. It's a good thing you found this board....the information and support I have gotten from everyone here has helped me keep fighting my battle.

Positive thoughts are key to beating this....don't let this beat you. There are many of us out here that faced this dragon and successfully slayed it.

I'll keep you in my thoughts and prayers.


I survived because I kept hope alive!!! Live, laugh, love and keep fighting hard.
Jeanette
Stage 3 oral cancer...over 60% of tongue and all lymph nodes on right side removed...July 2002.
Chemo and Radiation...ended September 2002.
#210 08-08-2002 01:37 PM
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I know,I was grasping at straws. Just hoping someone would say "yeah, that's a good sign that the radiologist can't say if its cancer or not" ..Thanks for getting me back to reality. You're right, this waiting is absolutely driving me insane. I feel like I am going to scream. From your experience, will I know something Monday? I assume the new dr at the neck clinic will do the biopsies surely....but I know that usually takes time to get back. Since this is all they do, won't he at least be able to tell me what he "thinks" he's seeing? What questions should I be prepared to ask?

#211 08-08-2002 02:27 PM
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PJ, from my experience take someone with you to help ask the questions and record the answers. Some quesitions, what is my treament going to be, what is my recovery tme, will I need chemo or rad. I will be very honest that I had no clue since I was so freaked out. That is why my husband went to every appointment with me and took notes. Good luck and take care Anne.


Anne G.Younger
Life has never been better.
#212 08-26-2002 11:01 AM
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PJ, My sister has oral cancer, one mistake she made, I believe, was jumping in and getting treatment without researching who is the best doctor or specialist in her area for this type of cancer. Please get multiple opinions from several doctors before getting treatment. Believe me it will be worth it. RESEARCH FOR THE BEST DOCTOR AND TREATMENT. Hopefully though, you wont need it at all. good luck!


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