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Introduce yourself
08/15/18 07:00 PM
interesting. my husband got diagnosed about 5 weeks ago and just started chemo and radiation this week. they said they don't remove tumors unless nothing else works at the cancer center he goes to. there were no options given for treatment...this is just how we do it and since...
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52 Views · 1 Comments
Coping / Anger and Fear
08/15/18 05:59 PM
Hi: Well, my wonderful Wife will be going to start her radiation treatments on August 24. She had Adenoid Cystic Carcinoma in her neck area which, according to our doctor, was completely removed successfully. However two weeks later he reported that they found some cancer cells...
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15 Views · 0 Comments
Oral Cancer Recurrence
08/15/18 12:34 AM
NOOOOOO!!!!!! I am so very sorry!!!!! I have been thru this myself and know how devastating this can be. However... this time you already have your medical team and know far more than you did than when you went thru it the first time. A recurrence diagnosis is something you...
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70 Views · 3 Comments
Introduce yourself
08/14/18 02:40 PM
Kristin - While I understand what you are saying, HPV+ SSCOT tumors have a distinctive marking. They might not know how you contracted HPV but they know for sure that HPV is the cause of the mutation and your specific tumor. For HPV- SSCOT, and I’m not sure if any of you menti...
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2,888 Views · 16 Comments
After Treatment Issues - immediate post treatment
08/14/18 11:50 AM
THANK YOU for purchasing the Vitamix thru OCF!!!! The more people who order the Vitamix blender one thru us, the more needy people who have long term swallowing issues OCF can provide a free Vitamix blender to. Im not sure what you mean by "the set"? Are you talki...
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3,643 Views · 10 Comments
After Treatment Issues - immediate post treatment
08/14/18 04:14 AM
After heart surgery (and not neck dissection) a friend told me about Mederma. So far so good....
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434 Views · 3 Comments
Currently in Treatment
08/13/18 01:23 PM
This is so great to hear! Things will continue to improve and you’ll get more stamina! Thanks for the update! Linda...
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19 Views · 1 Comments
Long-Term physical and QOL Issues related to treatment
08/13/18 12:48 AM
Let me clarify ... not baby wipes, but baby wash cloths ... very different! The roughness (but not too rough) really does grip the adhesive well. Thankfully. And thank you so much for replying, this helps me a lot. I don't feel quite so alone. I am so depressed about this whole...
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431 Views · 3 Comments
Introduce yourself
08/10/18 11:47 PM
Hi Erin, healing from a neck dissection takes time. I had mine almost a year ago and I’m still healing. It took me almost 2 months of physical therapy to be able to turn my head or to look up just a little. Today, I would say I have 95% flexibility back so don’t think what y...
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382 Views · 5 Comments
Currently in Treatment
08/10/18 09:42 PM
I made it through rads without a feeding tube and if I remember correctly one of the easiest things to eat was pasta with butter and green peas. The smooth rounded types (for example cavaletti or orecchiette) didn’t hurt my tongue and they just glided down. Oven-baked cod and m...
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1,858 Views · 29 Comments
Introduce yourself
08/10/18 09:12 PM
Marv, dont worry you are ok!!! I completely understand your posts and the reason behind them. This sort of thing isnt always black and white. I know 100% that you are not mentioning something here to profit from it or to encourage others to try it where it could be harmful or ...
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6,709 Views · 64 Comments
Medications, Treatment, Procedures
08/10/18 05:35 AM
Hi Christine, So, it is 8 months later. John has seen infectious disease wound specialist, been on two antibiotics, Cipro and Augmenten for two months. So far, the meds have cut the pain in my husband's jaw, but his wound has still not healed. it just looks a little different. Ba...
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3,478 Views · 9 Comments
Symptoms and Diagnosis
08/09/18 11:31 AM
I’m sorry for the confusion, I meant a microscopic analysis, not picture. No where have I seen an evaluation microscopically....
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117 Views · 4 Comments
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