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Symptoms and Diagnosis
04/21/18 07:38 PM
Correction: I just realized my MS diagnosis was actually 13 years ago! Will be 14 years in November. 😊...
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86 Views · 9 Comments
Currently in Treatment
04/21/18 06:49 PM
Jeanne, HPV positivity is the biggest positive prognastic factor we have for this cancer in the oropharynx, and elsewhere in the head and neck. I was looking through your posts, and would definitely suggest you find find out the HPV status, as most are positive in the orophar...
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35 Views · 3 Comments
Currently in Treatment
04/21/18 05:11 PM
Thanks for the updated tips....
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97 Views · 5 Comments
Introduce yourself
04/21/18 11:15 AM
Wow, that was really informative. Thank you so much Christine! I will make sure to get the testosterone and thyroid hormone levels noted before the RT starts. Will also read up about it as to why these hormones are affected. I also understand that in order to get advice on tec...
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498 Views · 13 Comments
Introduce yourself
04/21/18 06:37 AM
Timswife, Welcome to OCF and sorry you had a reason to join our group. If you are in VA, I would highly recommend checking out Johns Hopkins in Baltimore, MD. Hopkins is one of the best head and neck cancer centers in the USA. I was treated locally (PA) initially, but when I ...
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218 Views · 5 Comments
Introduce yourself
04/21/18 12:19 AM
I smoked cigarettes for 30 years so I know that makes it a possible risk. The only other thing I'd assume it could be are bad teeth but I'm not being told that....
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136 Views · 7 Comments
General Board
04/20/18 06:44 PM
This is indeed good news, Brian. Thanks so much for letting us know. Since the Biotene debacle I've been using The Natural Dentist paste and Tom's of Maine mouthwash. I'll look for Salivea (which to me sounds like the name either of an exotic dancer or a new genus of plant)....
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447 Views · 6 Comments
Symptoms and Diagnosis
04/20/18 03:58 AM
Im so sorry!!! Boy is that pathologists report difficult to understand for non-medical professionals. Thats an entirely new language consisting of only medical jargon. Dont let the stage get you upset. Ive seen many people come thru here as Stage 4 (myself included) and get...
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72 Views · 1 Comments
Introduce yourself
04/19/18 07:55 PM
The tongue scraper attachment is part of the Waterpik attachment set. You don’t have to buy one....
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1,188 Views · 18 Comments
Coping / Anger and Fear
04/19/18 04:17 PM
All, I was curious who out there feels like a physician made a mistake in their care. Not perhaps in initial diagnosis but more downstream. I got a second opinion last June from a well known treatment center. They were ringing an alarm bell that my local ENT surgeon was not. Bas...
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37 Views · 0 Comments
Currently in Treatment
04/18/18 09:53 AM
I went through something similar. During and after the treatment I had a lot of candida-like problems. I tried salt and whatnot. Then I tried eating (live) yoghurt, that helped a day or so. After a while I gurgled(!) with sauerkraut, that helped me! when I was able to chew an...
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497 Views · 6 Comments
Symptoms and Diagnosis
04/16/18 07:37 PM
WorriedSick101, Anything is possible, probable, maybe not, but the only way to be certain, minus a surgical biopsy, is an FNAB. The cervical neck has 7 nodal levels, and certain head and neck cancers USUALLY metastasize to specific nodal levels first, and usually higher in the l...
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700 Views · 13 Comments
Caregiver / Co-Survivor Forum
04/16/18 10:39 AM
Thanks again for the suggestions! We are working with my dad to get those calories in!!!...
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932 Views · 7 Comments
Introduce yourself
04/16/18 06:43 AM
Thanks Christine! I asked my daughter, she thinks it accelerated some 3 years ago, when I was able to eat salad again. Ah well, you can't have everything ... -Peter...
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217 Views · 4 Comments
Medications, Treatment, Procedures
04/15/18 05:39 PM
I think it was supposed to do something. They insist a caregiver stay on site (this version of the procedure is done in-office) and do all the driving. And whatever was going on, they kept saying, "Give her more X", X being whatever the IV drug was (I think I know now)....
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176 Views · 4 Comments
Coping / Anger and Fear
04/15/18 05:33 PM
Cougardad62, Curious to know what you mean by aggressive post treatment. Rehab etc? Other anti-cancer strategies? Jay...
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869 Views · 3 Comments
Symptoms and Diagnosis
04/15/18 05:26 PM
Journey, I'm curious to know a little bit more of your story. I've been a broadcaster for 20 years. I'm going to send you a direct message. Jay...
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190 Views · 5 Comments
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