Active Threads | Active Posts | Unanswered Today | Since Yesterday | This Week
Medications, Treatment, Procedures
05/27/18 01:36 AM
Oh good! Sounds like you're on top of things! (I worry when I think someone's going to suffer when they don't have to.) Hope all goes well and you get the information you need soon! And that the pain gets better soon, too!...
see more
40 Views · 5 Comments
Medications, Treatment, Procedures
05/27/18 01:00 AM
I did fill the Prescription, and I bought a package of Tegaderm waterproof bandages to put over the patch, per someone's suggestion who was on it for a while, due to back issues. So I am good to go if I want to proceed. I'm not in agonizing pain, like after my last Lingual Tonsi...
see more
40 Views · 5 Comments
Medications, Treatment, Procedures
05/26/18 10:15 PM
If hydrocodone is in the same class, it's part of what I take for migraines, and I do not having breathing issues with it (except for once, when I mis-timed a dose, which I will NEVER do again ... yikes ... but the warning is because it slows your breathing when you do that, and ...
see more
40 Views · 5 Comments
Medications, Treatment, Procedures
05/26/18 10:07 PM
Thanks Kristen. I hope you are doing well, it sounds like you sure had some rough times. The medications that I was referring to, are opioids like Oxycodone. Being that you get a steady release of medicine with the patch, I think they want to be sure you can tolerate the same ty...
see more
40 Views · 5 Comments
Medications, Treatment, Procedures
05/26/18 07:50 PM
I'm not entirely sure what exactly other meds you're describing, but when I was given a Fentanyl patch, it was near the end of my treatment and I couldn't bear the pain any more. I wasn't on much of anything else FOR the pain at that point, and I think I would remember, because I...
see more
40 Views · 5 Comments
Medications, Treatment, Procedures
05/26/18 03:41 PM
I just completed my 28th rad treatment, and have 5 to go, after three days off for Memorial Day Weekend. I also have 1 more of my 7 weekly Cisplatin infusions left. My throat is really starting to hurt when I swallow, and the mucous is really thick and sticking to my throat when...
see more
40 Views · 5 Comments
Symptoms and Diagnosis
05/26/18 03:21 PM
The Oral Cancer Foundation (OCF) is comprised of oral cancer (OC) patients/survivors and caregivers. We discuss primarily oral cancer, treatments, recovery, etc. Since we do not have medical professionals guiding our discussions we are not experienced or qualified to second gue...
see more
29 Views · 1 Comments
Symptoms and Diagnosis
05/26/18 09:32 AM
Hello , Can anyone tell me what can cause Dysplasia in mouth when we are young ? My Dr told me that Dysplasia in young patient is not from Genetic but From Tabacco, Alcohol or HPV Then He told me that If I Have genetic predisposition to cancer, I"ll Have cancer and not ...
see more
29 Views · 1 Comments
Introduce yourself
05/26/18 09:25 AM
Welcome to OCF! You're in the right place for info and support to help get your husband thru his recovery. Sounds like he has been thru a rough time with first having the NG tube then a PEG. Your husband must have had problems with taking in enough and maintaining his weight. ...
see more
39 Views · 1 Comments
Introduce yourself
05/26/18 03:47 AM
Hi there, Just wanted to introduce myself. My husband is the patient, a 66 y o who started with a lump in his throat around Labor Day 2017. Ended up being SCC HPV16+ of the supraglottus. I have joined this forum to hopefully get answers to questions he has and for moral suppo...
see more
39 Views · 1 Comments
Introduce yourself
05/25/18 03:18 AM
Your father is at the half way point where most patients begin to notice the side effects. For mouth sores, your father should be rinsing his mouth at least 4x a day with one cup warm water, 1 tsp baking soda and 1 tsp salt. The salt will probably burn like heck. Its ok to cut...
see more
1,030 Views · 15 Comments
Coping / Anger and Fear
05/24/18 02:40 AM
We found out dad has diabetes today. We also went to a cancer support group at a nearby hospital. I think it bummed him out. It sounded like the three folks who were there have been coming for years. Two of them have terminal cancers of the prostate and of the lungs. They talked ...
see more
894 Views · 15 Comments
Eating, Speech, Swallowing, and Alternative Feeding
05/24/18 02:06 AM
The nasal feeding tubes are very temporary. They are used more for patients who require a less permanent amount of assistance. Ive seen patients use these for anywhere from 3 weeks-2 months. Removing the tube is so much easier than removing the PEG or J/G kind of feeding tube...
see more
121 Views · 2 Comments
Symptoms and Diagnosis
05/23/18 11:00 PM
However, to truly understand your condition, you need to hear it from your doctor. The other possibility is to email your doctor and ask for an explanation. If not, you must consider a second or third opinion....
see more
77 Views · 3 Comments
Symptoms and Diagnosis
05/23/18 09:51 PM
Originally Posted by gmcraftPlease understand that members of the forum are either patients or caregivers who have or are going through the cancer journey. We do not have the years of medical training to be able to “diagnose” you even with photographs. You won’t want us t...
see more
77 Views · 3 Comments
Symptoms and Diagnosis
05/23/18 07:38 PM
Please understand that members of the forum are either patients or caregivers who have or are going through the cancer journey. We do not have the years of medical training to be able to “diagnose” you even with photographs. You won’t want us to, anyway, as it would be ve...
see more
77 Views · 3 Comments
Symptoms and Diagnosis
05/23/18 05:13 PM
Hello, im 22 years old male, history of breast cancer but nothing else , sorry for my bad english I have GERD and very bad dental hygiene So here's the story : One day I notice a small bump in my mouth. Went to the ENT and i had a biopsy done 16 days ago I got the re...
see more
77 Views · 3 Comments
Symptoms and Diagnosis
05/23/18 01:15 PM
Welcome to OCF! Im very sorry you are going thru a scare at this time. Ive watched your posts and seen you have received many replies with good advice on what your next steps should include. Unfortunately, medical systems, hospitals, doctors and even specialists can vary gre...
see more
183 Views · 11 Comments
Symptoms and Diagnosis
05/23/18 11:52 AM
I think you need to have some faith in your doctors. None of us is in a position to make a definitive statement. If you can’t trust the doctors you have seen, then you need to go find a second or even third opinion....
see more
183 Views · 11 Comments
Symptoms and Diagnosis
05/23/18 04:31 AM
Thank you for all the replies. I realise it's unreasonable to ask people on a forum to diagnose me based on this. I will go and get a second opinion. It's just that the past few months have been absolute hell. I have an extremely high pressure job and the emotional strain I've be...
see more
183 Views · 11 Comments
Introduce yourself
05/23/18 03:48 AM
Hello everyone! I followed Christine's advice and got CBC and KFT done before the RT to have his testosterone and thyroid numbers. Wanted to share the developments as of now. So today is the 15th session of IMRT (28Gy/60Gy received). Dad is developing ulcers in mouth and throat...
see more
1,030 Views · 15 Comments
Introduce yourself
05/23/18 03:21 AM
I was diagnosed in 2005 with SCC of the right lateral tongue. I also had no risk factors. I did a lot of research, asked a lot of questions, and even submitted some of my “cells” for a study looking into a genetic connection and another study (but don’t recall specifics). O...
see more
607 Views · 5 Comments
Symptoms and Diagnosis
05/23/18 02:56 AM
I’m not familiar with how things work in that part of the world, but when I went for a second opinion (multiple times) the new doctor/hospital would have my actual biopsy slides sent to them first for their pathogy group to review. In the USA there are oral pathologist who are ...
see more
183 Views · 11 Comments
Introduce yourself
05/23/18 01:56 AM
Hi, I had SCC on the right side of my tongue, too. T1 N0, well differentiated. I’m almost at the 5 year mark but I got it at the age of 25, am a non-smoker, HPV negative, and didn’t drink other than occasional socially. The sore was there for 6 or 7 months before my biopsy. ...
see more
607 Views · 5 Comments
Symptoms and Diagnosis
05/23/18 01:47 AM
I was diagnosed with leukoplakia about 3 years ago after a biopsy. At that time no doctor wanted to operate. My ENT said lets watch it and come back once a year. He also told me that only 1% turn into cancer. Well, I had to be that 1%. Things stayed pretty stable until one spot t...
see more
183 Views · 11 Comments
Page 1 of 2 1 2
Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online Now
0 registered members (), 23 guests, and 2 spiders.
Key: Admin, Global Mod, Mod
Forum Statistics
Forums23
Topics17,186
Posts191,551
Members11,625
Most Online306
Aug 21st, 2016
Top Posters(All Time)
ChristineB 9,990
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,743
Gary 3,552
Newest Members
goldy, ginge2217, PLH, maritisio, WorriedinChina
11624 Registered Users
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.6.0