#70131 02-20-2008 09:22 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I had to see the sirgeon this morning before Rads. He informed me that there is something at the base of my tongue. So therefore, Monday I will get the pre op out of the way and Tuesday I will go to the OR for more biopsies. Man , this is a never ending routine it seems. THe Dr had my lips bleeding more than usual but he had no choice. LOL I hear I'm sorry for hurting you Jim but!!! This stuff sure is making it hard to whip, but I am gonna do it. There can't be anything left to throw at me I hope. Have GOOD DAY ALL.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
Hang tough and stay focused. How many more rads do you have to go thru?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have 2 more rads. I think my mouth is ruined like my mind is LOL I am always bleeding from my dry cracked lips. The inside of them is milk white and sore as hell. They said agressive and they weren't kidding.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Ah Jim, hang in there. We are all here for you!!! 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi jim- so sorry the surgeon had to be so rough with you today. Sounds very painful....Hopeing and praying you get some relief soon. Big hug to you
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
Hang tough. Yeah I know how you feel right now and it may even get a little worse over the next 2 weeks or so but soon all these nasty problems will fade into the distance along with your cancer. It's very important to remind you to keep pouring down that water and food each and every day. It's probably more critical now than ever before. This is it, the last hill to climb so push that trains throttle and get to the top.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thanks all and I will post after I get home from rads today. Gpoing to havt to move some snow to get out this morning and the temp is 2 degrees. One pass each way in the driveway with the snowblower will get me out. Freezing rain tonite they are predicting so therefore I think a stop at Sam's Club for ice melter is in order. Have a good day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Boy you are really brave and stoic Jim. I need to feel your strength. I get strong for a moment and then they blindside me and I go all to pieces. But I make it through. You are just ready
for anything. Hang in there, you will come through this with flying colors. Leave the snow alone, it will melt all on it's own. You need rest and quiet. I will be thinking of you!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | YES consider formula and water the most important medicine of all- it will give you the stength to get through and allow your body to heal from this. K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well , this morning I finished the rads and had the pre op for next Tues and friday. I brought that ugly rad mask home. LOL Maybe someone will use it as Michael this Halloween. I'm off now until Tues at 11:30AM. I just have to find something away from home. Probably visit my kids and grandkids. For sure I will be here Sat for Brenda's prayer service. That is the #1priority.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Jim, you have been so very strong through all this...Lord only knows what you have endured.
Thinking of you and hoping that you'll find something enjoyable to do during your 'time off'.....
Lois
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Jim, congrats for making it through the rads. We've got Dan's mask hidden away somewhere. He didn't want it, but my kids thought we should keep it. Sorry you have to have more biopsies, my goodness, you sure have been through a lot.
You are one tough guy! Keep up the fighting spirit!!
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Congrats on finishing the radiation, Jim. We will all be keeping you in our thoughts and prayers as you wrap up treatment here over the next little bit. Stay strong, buddy!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Congratulations Jim. I still have that damn mask. I even took it on the plane and to the Fl House when I testified on the Gardasil Vaccination Bill. hasn't left it's room since.
I'm sure you'll do fine next week. How many days will you be without a computer?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I'm sure it will make a good Halloween Mask. LOL It reminds me of Michael from the h
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | from the halloweens movies with michael and his mask. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Jim,
Congratulations on your birthday. Keep on fighting and we all will be praying that you come out on top of this. If that mask really is yours, I am assuming that it isn't very scarey because it has the big smile of a winner. Enjoy the time with your family.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jan 2008 Posts: 82 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2008 Posts: 82 | Congrats Jim. I've been out of pocket this past week and will be again until Friday, your implant day. Best of luck, talk to you when you're back. Just got your news and Brenda's all in one day.
John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thanks all for the concern. I have no idea how long I will be computerless buy my daughter has one, LOL If I can beat her 3 kids to it. It will be after Tuesday I am sure tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Thinking of you this week - especially on Friday. You are so brave Jim. I know you are going to beat this. Sending you lots of strength.
miss kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hope I don't make anyone unhappy and keep up the happy front. I will check that mask and see if it has a smile. LOL going back to lay down and watch the race from bed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim, I just wanted you to know I will be thinking about you this week. If you can't get to a computer, do you think maybe your granddaughter could post a blurp for us to let us know how you are doing? Didn't she do that once before? Hang in there, hopefuly this will all be over soon. So glad the radiation is done! My Dad's last treatment is Tuesday! (Although he has now lost about 48 pounds!!!  )
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jan 2008 Posts: 41 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 41 | wishing you lots of good luck for Friday, i'll be praying for you. you have been through most of it, i am sure you will make it till the end and you will win this fight. God bless you, be thinking positive as i think you do. waiting to hear your news.
sophia
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Larrysdaughter, I didn't 48-lbs but have lost 44. LOL I wonder if your dad feels skinny like I do. I don't even know the guy in the mirror looking back at me. I think they gave me some extra, " Let's Knock Him Out " meds today. I can't seem to keep my eyes open. In fact, I'm going to go lay in bed and hope either the pain lets up or I go to sleep.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim. How did it go today? Are you at your daughters house? Hopefully you are resting and getting all the love and attention that you need...especially after this Friday! I will be watching for updates about ya!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | If I go to my daughters, it will be next tuesday after they take me out of isolation. Today I look like a chipmunk with it's jaws full of acorns. LOL If it isn't swollen, it's bleeding. I'll make sure there are updates.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi, Jim. I finally got logged onto this sight. I figured it was easier for you to talk this way. Ryan called last night and gave us the update on you. When you get to Lori's, we'll be able to help her and Ryan take care of you. I love you, Big Brother. Like I told you before, when you're hurting and too weak to believe for a miracle, we'll believe God for you. Carol | | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | So glad you checked in. Sorry to hear you are suffering. Hang in there, we are all here for you and thinking about you! {{HUGS}}
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Carol, So glad to see another family member of Jim's on here. We love that guy! Please keep us informed on how he is doing if you can.
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Carol, Welcome. It's great to see the family support Jim has. Jim, if you are reading, I'll be thinking of you the rest of this week and this weekend. Hang in there and keep fighting the good fight. There are lots of folks here hoping for the best along with you.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | It's so hard to watch my brother suffer with so much pain. You feel so helpless, sometimes. I am so glad he has so many people on here supporting him. I will keep you all updated on him. God bless you all. Carol | | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | glad to see you carol, i want every one in your family and jims family to know that i want the best for him also.. i know there has been alot going on and im the bad one for all that has happenend in jims life right now but i really do wish everyone would understand i did not leave jim because he has cancer.. there comes a time in everyones life that things are not all peachy and things have to move on... as you all know i was there for jim thru the first battle of his cancer and would still be there for him now if i was treated like i was a person.. and no i dont want any ones pity, thats the last i want .. all i wanted was to be treated like a person, not one to be pushed to the way side...i have so many times wanted to be there and take jim to the dr and such but it seems everytime i want to tell him that he sends me nasty email or messages on messenger that just makes me think other wise..i just ask myself who is this talking??it just seems he doesnt want my help anyway... im really glad you will be able to be there and help him... sorry for all the trouble i have caused in your whole family...and i do wish him and you all the best....luv ya all .. barb
Barb
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Will be thinking of you Jim. It takes a lot of courage to go into
surgery and put yourself in someone else's hands. I was not just scared, terrified was the word. You are very brave, just smile when you wake up and know the worst is over!!
Keep in touch,
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hang in there, Jim. Thinking of you.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, I don't know if you are still reading this but I just wanted to say how much it concerns me that you've lost 44 pounds during treatment. Over how many weeks is that? 7? 8? That is a dangerous rate at which to lose weight and it really doesn't matter whether you "had it to lose". It's a clear sign you aren't getting the nutrition your body desperatly needs right now.
In another topic, you were bragging about not having a PEG but given your weight loss your doctor should be insisting on the PEG if he wants to see you survive this and be around for a while afterwards.
I really love your spirit and how much you ahve survived in your life and that is why it just really concerns me that you would do this to your body, on top of what the cancer treatment is doing to your body. You need to get enough nutrition and clearly you are not getting enough of it orally. Other people here who say they are your friends, and who you regard as friends, should be pushing you to get the PEG too right now. If they really care about you and your your health, instead of some anti-PEG agenda, they would be.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Thank God there is someone helping to ensure that Jim gets the assistance he is going to need to get through this horrible ordeal! Jim, if you read this, know that we are thinking of you, praying for you earnestly!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | YesI am reading this. I was surprised to see my sister had posted. She's the baby of the family LOL I luv em all. Barb, why don't we leave this stuff out of the forums? I believe everyone in my family here and blood family hold nothing against you. You were great as long as it lasted, but I was being OC mean and couldn't help it. Someday you will believe one of us on here. I go for the surgery Friday at 6AM and scheduled for 8AM. Thanks for the kindness all and you are right,,it is tiome for a peg.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I was brought up to accept the actions caused by myself and not to sluff it to anyone else. Barb, no one in my family blames you for anything. You gotta loose that complex. OK?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, you'll be in my thoughts and prayers Friday and over the weekend. I'm glad you'll have family members supporting you and I'm glad you're going to take care of yourself in terms of nutrition even if it means getting the PEG. Hang in there, tough guy!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hey Jim,
Just want to wish you well and hope Friday and the subsequent recovery is swift and complete. Will be rooting for you.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Jim,
I'll be thinking of you over the next few days. Hope it all goes well and you will be back soon.
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Jim,
Just wanted to add my best wishes. Take care. Looking forward to your next posting.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Jim, my heart and prayers are with you. Good luck on Friday.
ps. Barb, this forum is for people that need support for oral cancer. Come here to give it or please don't post.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi, Barb. As you can see, I didn't respond to your message right away. Whatever happened between you and my brother is between you two, and it's none of my business, nor is this sight the proper place to bring it up. I'm here to support and love my brother through this ordeal he is going through. He may not be perfect, but he is my brother, and I love him. I've learned from experience you cannot go through life running away from problems that seem too difficult to handle. You have to face the head-on, and w deal with them. And that's what my brother, Jim, our entire family, and I are doing. We're dealing with it, supporting him, loving him, and we'll be there for him no matter what. You have a good day, and take care of yourself.
Hi, Jim. I tried to get Friday off, but couldn't get it. I will be praying for you. Have Lori call me and let me know what happens. I love you, Big Brother.
Last edited by Brian Hill; 02-28-2008 02:21 PM.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I do have to say this in Barb's defense.. She was the only one there for me for many months and never backed off 1 time. She was great. I needed her in my corner to help me start this fight that continues.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 9 Member | | Member
Joined: Jan 2008 Posts: 9 | Jim,
My prayers are with you! Hang in there! You have been an inspiration to me and many others on this site! And I'd like to say Thank you. Keep finding that amazing strength and keep up the fight! We are all fighting with you!
Age 47, Right tonsil removed 1/18/08, large mass in right side of neck. Both have been diagnosed SCC Stage IV, on 1/24/08. Right radical neck dissection and left tonsil removal 2/8/08
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