#55971 12-24-2004 12:05 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | I dont know if my last post worked (too many meds) just wanted to look for supporters post surgery...manyana perhaps? The thyroidectomy wasnt as ez as I had thought it would be (the incision is 7-8 " not 3-4") oh well back to bed Seasons Greetings & hope to be up & online better tomorrow & even better for Christmas Day??!! Surgery was the 22nd. Take care
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#55972 12-24-2004 02:39 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Maria,
I'm sorry you are having to deal with this, especially at this time of year. My thoughts and prayers are with you -- I hope each day you can see some improvement and healing.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#55973 12-24-2004 03:46 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Maria
Well done, that's the worst over, at least you can now start to look forward, take it easy give yourself time to recover..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#55974 12-24-2004 05:02 AM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Hi Maria, Supporters you have. Sorry you aren't feeling very well. These procedures just don't seem to be very fun. You WILL start feeling better. I am sending the positive vibes to You, not just on the forum, but also up I-5 from just a couple hours south of You.  Peace Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#55975 12-24-2004 05:14 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Maria,
I'm sending some powerfull good vibes your way also. Time will ease the pain your in now. I hope you can find some peace and comfort this holiday season.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55976 12-25-2004 11:08 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Maria
I'm sorry you are not feeling well. You are in my thoughts and I wish you better health in 2005. Thankyou for posting, let us know how you are progressing.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#55977 12-25-2004 05:57 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Maria, sorry your having difficulties. Will pray for comfort and healing. Merry Christmas.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#55978 12-26-2004 08:58 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Dear friends, you are all so wonderful, brave & supportive! I cannot thank you enough for your kind words when all seems bleak..I can feel the LOVE! I actually do feel much better after a rough couple of days but feel so blessed to hear from you all & wish you LOVE, JOY of the SEASON and continuing good progress. I was told so little by the hospital I didnt know quite what to expect..I am awaiting the pathology reports from the excised lobe and I am hoping that my results will be as positive as my dear cyber friends! Thank You
Love Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#55979 12-27-2004 03:55 AM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Hello Maria, It is great to hear that You are feeling better.  Will keep on sending those positive vibes up to you and praying that the path report is a good one. Peace Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#55980 12-27-2004 10:43 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Maria
I'm so glad that you are feeling stronger. I'm hoping to hear good news with your pathology report. Sorry your medical team are not more communicative - it helps to have all the info possible.
Thinking of you, love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#55981 12-27-2004 01:24 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Maria, Hope things get better for you? Being sick at this time of year is not much fun. I'll pray on you. Helen, what part of Australia are you from? Cathy R.
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#55982 12-27-2004 02:29 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hello Cathy I live 2 hrs southwest of Sydney near the eastern coast of Australia. The semi-rural village I live in is called Bundanoon which is an aboriginal word meaning 'deep gullies'. It is on the edge of a huge national park. Love from Helen 
RHTonsil SCC Stage IV tx completed May 03
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#55983 12-28-2004 11:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maria,
I am glad to see you are feeling a bit better and I am hoping for the best possbile path report.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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