#49662 11-25-2004 10:19 AM | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | As some of you have already posted, it is that time of the year when we all give thanks for the good that has been in our lives, survivorship, good supportive friends around the country, and stronger family ties as a result of all pulling together in a time of crisis. It is also the time of year when people around the country tend to think of giving something back, and I mean the general public, benevolent corporations, as well as those of us that have been on the lucky side of all this. Today on my doorknob was a note from a neighbor, a 13-year survivor of breast cancer, with a donation envelope to the American Cancer Society attached to it. This grass roots effort that they have working for them helps bring in the needed monies (actually millions of dollars) that any non profit needs in order to provide the services they do, and try to effect the changes that are needed. OCF is no different. We have a nice, color, 3-fold brochure that fits in an envelope and also contains the same kind of donation envelopes that ACS uses. I am asking those of you out there to take part in trying to raise donations for the foundation on a community level. People interested in helping just need to send me an email to [email protected], and I will send you out the brochures and envelopes. Many of you have already been generous personally this year with donations of your own to OCF. What is need is an effort like the one that ACS (that I encountered on my door knob) undertakes each December. With over a thousand of you currently on the boards, you could really make a difference in OCF's future. The "who we are" brochure and the donation envelops are packed in bundles of 50. I hope that some of you will make the time to try and help. Do not think that your small effort will not have an impact. Margret Meads quote
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49663 11-27-2004 09:01 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Brian, sent an email with my address. Please contact me if you didn't get it.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#49664 11-27-2004 06:37 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Brian,
Ditto what Kirk says
Jack
..........
Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#49665 11-29-2004 03:14 PM | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | Well, I would have thought differently, but since putting up this post I have received 5 takers on helping the foundation with the donation envelopes in December. Of course they are the usual suspects, the people that are always there to help, and I could have guessed ahead of time who they would be...but I did expect some others to join in. When you consider that almost two thousand people have looked at the forum (members and lurkers alike) since the post was put up, that's a pretty bad return rate. Guess when you are getting the milk for free there is no need to buy the cow... just hope that the cow doesn't starve to death and dry up. To those of you that offered, the flyers and the envelopes left today, and you should have them by Thursday at the latest.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49666 11-30-2004 04:09 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Come on guys, we can do sooooooooooo much better than that!!!!Love to all of you!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#49667 12-02-2004 03:38 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Brian,
I must have missed this when it was first posted. Please send me the materials and I'll do what I can. - Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#49668 12-02-2004 05:42 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | I too will find 50 doners if you send me the stuff. I kinda thought you would send them to me without all this formal stuff.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#49669 12-03-2004 08:35 AM | Joined: Feb 2004 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 43 | Brian, send me the brochures!!! WE need all the help we can get!!! Thank You for all your help,Brian!! I'm going to ask people to give a donation rather than give me a Christmas present. Cheerfully, Tom Roussell -------------- Dx 1/20/04 R Tonsil Stage 3/4 T3N2bM0 Tx 3/21/04 neck dissection 7/21/04 Cisplatin x3 Radiation x 35
SCC Tonsil Rt T3 N2b M0 side DX Jan 04 Tx 36 Rad 3 cisplatin Tx ending May 04. partial neck dissection july 04..... July 15,08 mets to liver Age 57...Did Methotrexate Sept 08. Now on a trial drug Panitumumab, Feb4,09 treatments stopped. going to Tibetan Medicine.
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#49670 12-12-2004 04:02 PM | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | I just wanted to let everyone know that the very first (3) donation envelops arrived at OCF on Saturday. Small donations for sure, but donations that would not be here if you guys had not been out with the borchures and envelopes. My guess is that we will be seeing a steady stream of these as the end of the year approaches. It is working and it is because those of you who offered to help OCF are doing good!!! My hearfelt thanks for making this work.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49671 12-17-2004 05:53 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Brian, Hope you receive thousands more.  Everyone, Where are we on the "words". Be nice to have something for the Virginia walk......... Peace Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
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