#15550 06-01-2004 03:29 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi All,
Well, I had my 4 month CT scans (Head, Chest, Neck) on Sat and will be going to U of C today to hear the results.
I have been having a tingle in my neck and quite a bit of swelling in the center of my throat. My oncol tells me the is Lymphedema. Man I hope he's right.
I will be back with the results later today.
Hope everybody is doing well. Talk to you soon.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#15551 06-01-2004 03:45 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Good Luck Robert, I have my fingers crossed for you!
I have lots of tingling in my neck and until the past two months or so had lots of swelling in my neck.
Post your results as soon as you can!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#15552 06-01-2004 04:45 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hoping and praying for good results, Robert!!!God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#15553 06-01-2004 04:51 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | positive vibes being sent your way Robert...
prayers.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#15554 06-01-2004 05:31 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hey Robert. I'll be anticipating good news!
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#15555 06-01-2004 06:21 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Robert,
I'm hoping for totally good results for you!
(Coincidentally, today's Wall Street Journal has an article on lymphedema as an after-effect of radiation. I just finished reading it when I saw your post.)
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#15556 06-01-2004 11:36 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Robert,
Hope all goes well and news is good! Praying for clean results!!
Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#15557 06-02-2004 03:56 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi Everyone,
First let me thank you for your kind words. You are the best.
I met with RAD/ONC/SUG yesterday.
I actually got to see all of my CT scans on the computer not just a report. Pretty cool. No very cool.
All reports were very positive. Complete response is what they are telling me! I am so frigging happy I could burst.
My wife and I had a son last WED and making it to his birth was a large milestone. My next milestone is to live long enough for him to remember me. After that it's high school graduation.
I am thankful to god for the opportunity to write this.
Thanks again everyone.
Robert Hamilton
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#15558 06-02-2004 04:20 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Robr: Congratulations, Robert. Excellent news. Am so pleased that all of the prayers were heard and worked. Guess He has more for you to do here for Him, your family and yourself. Thanks for the good news.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#15559 06-02-2004 04:20 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Robr: Congratulations, Robert. Excellent news. Am so pleased that all of the prayers were heard and worked. Guess He has more for you to do here for Him, your family and yourself. Thanks for the good news.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#15560 06-02-2004 04:56 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Robert, wonderful news! Praise God!!! Congrats on your new baby boy!!!Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#15561 06-02-2004 05:01 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Robert,
This is truly wonderful news. Congratulations on your son! I hope he will be sleeping well soon so you can get some rest. I am hoping you'll see graduation too. God is good, all the time.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#15562 06-02-2004 05:51 AM | Joined: Jun 2004 Posts: 2 Member | | Member
Joined: Jun 2004 Posts: 2 | Hi my name is Randy. I have just found out that I have squamous cell cancer. Can you tell me anything about it.or what it is. | | |
#15563 06-02-2004 06:02 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Robert, this is very good stuff! Clean scans and a brand new baby. Life is damn good! Congratulations and here's to making it to all the goals you set.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#15564 06-02-2004 06:08 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Hi Randy,
Welcome to this site. I'm sorry to hear about your diagnosis, but there is a lot of great information on this forum that should be helpful to you. Your post should probably be the start of a new thread (if I knew how to move it, I would -- hopefully someone else can do this).
It would help us if you could give us some more background to the extent you have it about the location of the tumor (tongue, tonsil, etc.) and what stage it is, if that has been determined. Also, what types of doctors have you seen thus far, and how was the tumor discovered?
There are patients, survivors, and caregivers here who have dealt with oral SCC in various locations and at different stages -- if we have a few more specifics about your situation, it will help in trying to give you some meaningful answers.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#15565 06-02-2004 06:27 AM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Hi Randy, most of us here have it. Where is your at ot located. That would help us help you. Mine was on the tongue, first, then the floor of the mouth and finally in the jaw. Mine did not grow fast, but I also caught it early. Please write back and talk to us, hopefully out of all of us on the site, someone can help you or ease your fears. ALways, Vicki | | |
#15566 06-02-2004 07:09 AM | Joined: Jun 2004 Posts: 2 Member | | Member
Joined: Jun 2004 Posts: 2 | Cathy:
I found a lump on my neck about a month ago. They said it was a infected syst. I had it removed and they sent the sample in and it came back squamouse cell. I have a PET scan sey up for this afternoon and that is all I know about it.
The lump in my neck came up over night.
Randy | | |
#15567 06-02-2004 07:15 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Robert -- just wanted to join the chorus of folks celebrating with you.... Awesome, Awesome, AWESOME news!!!! Keep it up!!
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#15568 06-02-2004 09:45 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Robert,
Praise God for your good news. Enjoy life and family and experience the joy God intended for us to have! Also, congrats on the new son! That is so wonderful and I know you and your wife will enjoy him!
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#15569 06-02-2004 09:59 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Robert, Thank you for sharing your great news and congratulations on the birth of your son! Take Care, Dani 
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#15570 06-02-2004 10:09 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Robert,
Thank you for the double-dose of g-r-r-r-r-r-e-a-t news! I know you had a rough night the other night just like we all do but it turned out just fine. I hope you enjoy that wonderful gift of God, your new son! There is not much that compares to the miracle of birth.
May God continue to bless you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#15571 06-02-2004 10:22 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Oh Boy Robert ..did we need some good news around here...woooohooo. Clean scan AND new baby boy.
Congratulations on both.
Cheers Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#15572 06-02-2004 10:28 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Congratulations on the great news Robert! We sure could use some here right about now. And a new baby to boot? That's wonderful. I hope you are able to reach every milestone you have planned with the newest member of your family. We all just have to keep on believing - I know I'm trying my hardest to do so.
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#15573 06-02-2004 04:55 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Robert, I cried when I read your post and then showed it to my 20 year old daughter. I can't express how happy I am for you. I also understand how you are feeling about your brand new miracle, parents with cancer have a hard time seeing into the long term future with their kids. My youngest is 10 and I have two grandaughters, ages 4 and 6. Here is how it worked out for me: Starting out, I convinced myself I would be happy to "make it" to Sam's (my youngest daughter) High School graduation. Then, I "upped" it to seeing my grandaughters graduate. Then it struck me that all three of them would need me around when they had their own children, what if they had careers.........who would watch their babies so they didn't have to go to daycare????????? So, I concluded that I will just have to stay around to be that "cute" 90 year old I have always figured I would be. My two grandaughters have never seen day one in a daycare center thanks to "Nana", just seems fair that I do it for all of them  !! So, up the ante Robert...............and we'll talk about this again in, say, 20 years??? Much love and kiss the baby for me. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#15574 06-02-2004 04:59 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Robert, A hearty congratulations on both chunks of good news. Don't you just love the feeling when the doc says "your OK!"
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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