| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Come and "Walk the Rock" this Sunday, September 30th in Plymouth, Mass! The 5th Annual walk will be rain or shine: http://www.oralcancer-screening.org/events/index.php?eID=5036If you live near the event, please come out and suppor it. I encourage OCF members to attend this walk or other walks, its a great way to meet other members and spread the word about what OCF does. Team work makes the dream work! Thank you so much!! Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I did this walk today with my daughter, parents, brother,Ken's parents and some close friends. The weather was miserable but we got through it. The event was wonderful and I got to finally meet people in person that I have "met" on these boards! I met Kerri's husband and adorable children (she wasn't up to making it today) and Amy(aimeelee311) who lost her mother earlier this year.
We raised a lot of money and we are planning on making this an annual tradition. It is just a small way to give back and to make people aware!
Morgan had her shirt on that matched ours with a picture of Ken, Morgan and myself but her's said below "In memory of My Daddy" - I know it was a little shocking for others to see but I think it made the point!
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Way to go Jill!!! Im so proud of you that you went to this event. I know how difficult it is for caregivers of those we have lost to attend the walks. At the different walks Ive been lucky enough to attend, Ive spoken to many you have lost loved ones. Its always such a eye opener hearing all their stories.
Thnks for everything you have done to help spread awareness!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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