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| Joined: Nov 2018 Posts: 1 Member | OP Member Joined: Nov 2018 Posts: 1 | I just registered on this site today. Yours is the first post I have seen...and what a coincidence. I had(have?) stage2 tongue cancer/ partial glossectomy/60gy 30 treatments. Just finished 4 weeks ago and trying to adapt. I’m looking for guidance on expectations of recovery. Such as: eating problems,mouth sores,bad thrush,speech issues etc. You sound like I will find some of this on this site. Glad you are doing so well. I hope it didn’t take 5 years though! | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCFm Donc! Sorry you have a need for our group but you will find info and support from other members who have gone thru this already. We'll do our best to help get your thru your recovery. The worst of everything is already behind you. Unfortunately as you've found out, recovery can take a LONG time!!! Recovery is so much harder than most patients think, full of ups and downs. Its full ofSo much of your journey depends on your intake. The better you do with intake, the easier things will be for you. Every day your intake goal should be at least 2500 calories and 48-64 oz of water. Taking in more certainly cant hurt, even 4000 or more right now is not too much. After everything you have been thru your body is currently using up an incredibly advanced amount of calories trying to repair itself after your cancer diagnosis.
Read thru posts and you will pick up tons of tips and helpful info. Hang in there and soon you will be almost back to normal or have found your new normal.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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