Hi everyone! I work for OCF and am currently reaching out to cancer and treatment facilities nationwide to educate them about the survivor/patient forum. Our goal is to send each hospital our web support cards to have available for new and existing patients. These cards tell them about the OCF website and information. I have had a lot of luck getting in touch with the social service departments, however, the radiation and chemo departments have been a challenge because they are so busy working with patients, they don't always have time to come to the phone to speak with me.

If any of you are going back to these departments for treatments or recall visits and would be willing to take some of OCF's literature with you, please let me know and I will send you some materials for your next appointment. I can be reached at the OCF office 949.273.4400 or you can always email me, [email protected].

Thank you so much!!!

Jamie,

The doctors and hospital I go to already have the brochures. I take some with me to my appointments and stock them up. A good contact person would be a nutritionist. Most OC patients end up talking with them. Everyplace I go also including my oral surgeon, ENT, family doctor, and gastro docs all have the pamphlets.

Another point of contact would be HBO clinics. Both times Ive gone thru HBO, I always end up finding out about other OC patients and give them brochures.

Best of luck with spreading the word. Thank you

Thank you Christine!!!

Jamie,

This Thursday, I will try to follow up with your contact in radiation at Fox Chase. You didn't mention to me anything about the chemo department there. Have you had any contact with them?

Jamie - are you having much luck with MD Anderson? I am being followed in the Head and Neck Center, and up to this point have never seen any OCF brochures, etc unless I've brought them myself. The Head and Neck Center is where ALL oral cancer patients are seen and followed, so it's an obvious place to make sure they are informed. I have also repeatedly informed my surgeon, oncologist, fellows, nurses etc about OCF.

I am going this Tuesday for my 4 year follow up, let me know if there's anything I can do. Hopefully you've been able to reach them.

Jerry,
No, I have not had any contact with the chemo dept. I know you have OCF brochures but do you have the web support cards? If not, I will send those to you. Thank you!

Jamie,

I would be happy to take web support cards to the Hospital of the University of Pennsylvania. We have an appointment there in a few weeks and I can hit Radiation Oncology, Plastic and Reconstructive Surgery, and Head and Neck Cancer.

Anita

Hi Anita,
That would be great! Will you please send me your address so I can send you the web support cards? You can send me a PM or email me [email protected]. Thank you so much!

Jamie

Janie, you can send me the cards. My address is in the system at OCF. Make sure it's the Yardley address. Langhorne was my office and I'm retired and that address shouldn't be in the system any more.

Thanks. Jerry

Hello Jamie,

I will be heading to HUP in two weeks, I still have everything but do not have any web support cards. My address is also in the system.

Take care,
Donna

Jerry and Donna,
Can you both please send me either a PM or email me at [email protected] with your address. I can't access the system. Thank you!

Jamie,

I will be going back to Emory University Medical Center regularly for the forseable future. If you would like to send me the materials I will make sure they get distributed to the ENT dept and the Oncology/Cancer Center.

Jamie,

I have a bad head cold and did not make it to Fox Chase today. I will be there in 2 weeks and I will follow up then.