Hi all,

I went for my biopsy results with the doctor today and was told I have to have surgery again. I'm prety bummed about this news. My partial glossectomy will be about 1 month before my wedding. Talk about stressful. My doctor said the results of the biopsy were severe dysplasia. With my history she thinks it will turn to cancer and better to remove now.

These surgeries are starting to get to me. This will be my 4th in about 2 years. If anyone has any suggestions on thier experience with this many surgeries. My doc says I am not a candidate for chemo or radiation at this time.

Suzanne, do you think it is time to get additional opinions?

Suzanne. Sorry to hear all that you are going through and also with your wedding coming up soon. I would certainly get another opinion soon. Hang in there, but do get another opinion..

Suzanne

What a stressful event so close to your wedding!! It really can't hurt to get another opinion and you may find that there is another option or you will be more comfortable with this option. Good luck dear.

Patty

This doctor is my second opinion but I know only 2 opinions is not always enough.

I do have another question. This will be my first surgery with this doctor. The other 3 were done by another who I decided to leave. My doc explained what she is going to do and it sounds different from what my first doc did. She will take more of the top layer ie..more dysplasia instead of more muscle. Does anyone think a different technique of surgery will possible provide a different outcome?

Oh Suzanne,

I am so very sorry. I came across your post and felt so bad when I read that you have to have surgery "again" and right before your wedding! Timing certainly couldn't be worse for you. You are also very young to have this kind of cancer. This should be one of the most carefree and happy times of your life. Surely a lot of your joy has turned to stress having to go through the surgery and all. I LOVE weddings and would love to hear about yours....details details. Nothing about it would bore me. :-)

My husband is in stage 4C, the last stage of the last stage and he was "just diagnosed October 28, 2008". He never smoked or drank in his lifetime. Oncologist hasn't given him much time and my heart is broken. He says my husband has only months to maybe 24 months, IF he can beat all the odds against him. Certainly doesn't give us much hope. I can't imagine my life without him in it. We've been married 38 years this June 12th. I'll be anxious to see your updates.

All the best to you
Brenda smith

Hi Brenda,

I am so sorry for what you are going through. That is just terrible. Have you gone for other opinions? Please feel free to send me PM so we can talk more. I always have an ear for venting. We all need to do it!!

You are right...the timing for my surgery could not be worse. But sister and best friend have been great about helping me get things get done. Ray (my fiancee) has been great too. I'm a lucky girl. That is one thing that cancer had me to learn...I appreciate everything now.

I look forward to talking with you. I will let you know about my wedding plans...you don't have to ask me twice!!!

Suzanne

Suzanne:

I have an excellent ENT in Allentown. This doc has treated many oral cancer patients. He has a wonderful reputation. He is the doctor of some other OCF members too. If you would like to schedule an appointment with him, it wouldnt hurt to take a ride up here. Just let me know and I will pass on his name and number.

Thank you Christine. I will let you know:)

Suzanne

Suzanne,

Where are you being treated again?

Hey Suzanne,
I'm sorry to hear about another surgery. I can kinda relate. I am getting ready for my third. It's so depressing going through the steps to only find out that you have to do it again. I got two opinions and both suggested biopsy and surgery. Have you had a biopsy yet? I hope it all goes well. Keep us updated.

Wow, sorry to hear about another surgery to go through. Lots of thoughts and prayers being sent your way.
-Steve

Wow. And I thought that I had bad timing! But, having said that I am glad that you are receiving prompt treatment and some day this "challenge" a month before your wedding will become one of the wierd special stories you share about your wedding day.

Good luck with wedding plans and simultaneous surgery plans!

You'll get it through it.

Donna

Fox Chase...any thoughts on that?

This will make for a good story about my wedding day...that's for sure!!

Jbabb...I'm so sorry to hear you are in the same position. It really stinks, doesn't it? You will be in my thoughts. I wish you much luck and hopfully a speedy recovery. Here's to the Ensure!!!

Suzanne when is your surgery next month?

Patty

Hi Patty,

My surgery is on 2/11/09

Thanks Suzanne, I just want to know when to give you that extra bit of pointer zen from all my furkids so that things will go smoothly for you. Thinking of you and hoping for the best.

Patty