Hello all,

Boy has it been a busy last two and a half weeks since John completed treatment. He still feels lousy, totally exhausted with times of sharp pain in his tounge.

At the oncologist last week, she looked at his GTube Site and wanted the ENT to look at it to be sure it was "recurrence or spread" She told us taht when the GTube was placed it could have passed by the tonsil and brought cells that seeded the GTube site.

Has anyone heard of this? Has it happened to anyone? What treatment options happen?

I didn't ask the oncologist becasue I wasn't sure that John wanted to think about any of these issues and honestly, I didn't wnat to either...I must say it sacared us a bit, but we keep saying oh its jsut granulation tissue...nothing to worry about...

Any thought would be appriciated...

Thank you all and lots of love,
Sara

Honestly it's the first time I have ever heard of anything like that happening. Did they do a biopsy to confirm that it is, in fact, SCC?

Sara
I understand that you donot want to worry John, can you phone someone in the oncologists office and try and get some more information, you'll go crazy if you don't clear this in your own mind.
Sunshine... love and hugs
Helen

I have talked with numerous doctors and done a variety of medical database searches.... this has never been mentioned and no doctor that I have talked with has ever heard of it happening. It is most likely an infection around the opening that needs to be treated. If everything that roughly went past the tumor site was capable of doing this, then how would people eat in their early (undiscovered/diagnosed) stages of this without getting esophageal or stomach cancers? I am only giving you an educated opinion, and I am not a doctor, but I would look at infection and take SCC out of the equation and out of the list of things you already have to worry about. Infections around PEGs are commonplace.

Thank you all so much...you have been very very helpful...Will follow your advice! Have a great eve!! Best, Sara

I hope this won't sound to harsh or opinionated, but I think I would also, in your shoes, find myself a new doctor!
Minnie