Rex had a terrible night on Sunday night, he woke me up at 3:00 am on Monday morning and couldn't breath at all. He said it felt like everything had moved down to his voice box. We went to the local emergency room and the ent was on vacation. We then went to the University where we had treatments. They ran the tube down his nose and said their was a lot of junk around his voice box no obstructions and sent him home.
We get home and about 11:30 am he came said he couldn't breathe again I called the radiation department and told me to get meat tenderizer and mix 1/2 teaspon of that with 1/4 cup of water.
Has anyone else been advised to do this?
Thanks
Pat

Meat tenderizer is actually derived from salt, You were making him a saline solution.

The nurses in hospital used meat tenderizer to clear my PEG tube (the small, crappy one).

Thanks all I was just surprised. He was using a solution of salt and baking soda to rinse his throat and they said that the meat tenderizer was better. I guess I don't understand but it worked. Also he can't seem to function without the air conditioner. Is that common as well
pat

Now Rex says that it's moveing down farther in his throat. This must be one hard recovery is all I can figure. I seems like we take one step forward and three steps back. Is that a true statement?
Pat

Pat,

His recovery will be very very very slow and probably last the better part of 2 years. At first he will have more bad days mixed in with some good days and eventually the good days will outnumber the bad ones until the bad ones go away. My first year was worst than my second year. My third year post Tx has been mostly normal. My taste and saliva saw some improvement in my 4th, 5th 15th and 24th month post Tx and I am probably 90 to 95% recovered in both of those depts.

As we say, everyone can be different because of all the variables associated with us, our cancer and out Tx but generally, excluding the unfortunate ones that have a recurrence, the above is a good summary of the recovery.

I have the mucous acting up worse than ever lately. You feel like you are going to suffocate at times. Especially when in a recline or part recline position, I can feel for your hubby. Buw I know it will not defeat me.

the mucous build up is terrible and the bane of both my post radiation periods. SELTZER Water was and remains my "miracle" cure. The fizz is just enough to liquefy the mucous so I can spit it out. If your husband can gargle with seltzer, it may help him also. Like EZJim, reclining for any period of time brings on that dry heaving suffocation, so I prop up with an extra large pillow in bed (Target has full body pillows - about two regular pillows long on sale this week for $8)
David's summary of recovery is "spot on". Don't even think of recurrence at this time - focus on each day. I push seltzer water because my mucous is so thick that even when I do hawk it up, it sits on top of the drain until I pour some seltzer on it.
Safeway has the best deal on seltzer- in generic store brand cans . Be sure to buy only the 12 fluid oz cans and NOT the large plastic bottles as otherwise the carbonation dissipates upon opening and you will not get enough fizz to do the trick. Amazing to see the stuff that comes out but psychologically gratifying as you expel the build up.
Good luck
charm

Thanks for the suggestions. I will talk with him about the selzer water and see if we can get that going. I just don't understand where all this muscus somes from. I have allergies and get a lot myself but it's nothing like what he is experiencing. I am glad to know that it is normal for the chocking feeling, that really scared me when it happened. I know that it scared him as well.
I don't think that he realizes that he is not going to get better in a short time. I think that he expects more out of himself than he can. He did take a couple of showers but right now he can't even do that. I am back to bathing him on the couch. That is his new bed we don't even go upstairs at night to bed. He sleeps in his chair I sleep on the floor. We were talking tonight he said he never thought that would happen to him, that I would have to take care of him. That I would be the one working, since he lost his job at christmas, it's a funny world out there. Good thing I am learning to live in today. Or at least trying. I know that I live my life in recovery that way but sometimes it's hard to apply it to other areas of my life.
Pat

Scatter radiation (or direct) hits the sinus cavities and creates acute (during treatment) sinusitis, and after treatments, at least in my own personal case and others that I have talked to long term chronic sinus inflammation that produces.... TONS OF THE STUFF. It will likely be part of your life for the duration. Whenall the treatment is behind you, keep an eye out for sleep apnea caused by the accumulation of mucus in your throat while sleeping. It just keeps adding one thing after another as the years go by. I try to keep perspective by reminding myself that in order to have all the crappy long term complications I do, which are many, I have to be alive.

Also I have found out recently that sleep apnea can also be caused by 2 70 lb dogs sleeping on the same bed with 2 adults.

They are supposed to sleep next to you, not lay on top of you!!! For all you youngsters out there that do not remember the band "Three Dog Night" who wants to put up how they came up with that name?

Brian

As if the youngsters cared. But as the super seltzer proponent I feel compelled to answer. Despite your warranted skepticism as to Wikipedia, in this instance, the write up comports with what I remember hearing on the radio from the disc jockeys back in 1965. Apparently the CD set spelled it out.
[quote]The name

An official commentary included in the CD set Celebrate: The Three Dog Night Story, 1965-1975 states that vocalist Danny Hutton�s then-girlfriend June Fairchild thought of the name when she read a magazine article about indigenous Australians, in which it was explained that on cold nights they would customarily sleep in a hole in the ground while embracing a dingo, a native species of wild dog. On colder nights they would sleep with two dogs, and if a night was especially cold, it was a "Three Dog Night"[/quote]
Charm

Amen Brian. Short but meaningful.

I am really starting to undertand why others say that your life will never be the same again. It's the things that pop up as you go through life. They all don't happen at once, but they do happen at some point. I am grateful to have found this group to help identify some of the side effects of it all.
Pat

I wake up often with Lamont's (big baby Red Nose Pit) head squarley on my neck and he snores worst than Jim. lol

That is the correct answer. A three dog night is one frackin cold night. But as I understand it, they didn't sleep with dingos, but domesticated dogs. A dingo will eat your face off in the night given half a chance. Take your eyes off of your children when in he outback, and they will take them down and away as well.