Posted By: Daniel Bogan On'gist report - 06-01-2004 09:55 PM
Hello All,

Met with the medical on'gist today. Any Chemo if I decide to take it would be purly pallative. She suggested Texol & Carboptztin (Cisptztin) but had reservations about it doing any good. She suggests repeat scans at 6 weeks and again at 12 weeks. She was honest an upfront. I thank her for that.

She ordered a cat scan of my chest and lungs for this Friday,June 4th. A MRI of head and neck for Monday, June 7th and a Cat scan on June 9th of my neck. Pick up all films on Friday June 11th and see the on'gist again on Tuesday, June 15th. Will have a much clearer picture than.

Her best guess is anywhere fron 3 to 6 months. Im betting much longer. I am a stubborn son of a Bitch!!!! Thanks again for all your kind words and support,

Love, Danny Boy
Posted By: aussieh Re: On'gist report - 06-01-2004 10:28 PM
Dear Dan

I am desperately sad to read your news. You are in my heart - your courage and determination are inspiring. I am sending positive energy to you and your family.

From Helen, with love
Posted By: JetAgeHobo Re: On'gist report - 06-01-2004 11:00 PM
Dan,

Pretty much crushed to hear that news. Hoping for all the best, and am betting on your side as to much longer.

Bob
Posted By: piemetoo Re: On'gist report - 06-01-2004 11:30 PM
Dan,

was sad to hear your news. Has anyone suggested photodynamic therapy. I don't know much about it but I am one to just keep looking for new things. I have heard it is usful for some people. Hope your scans go better.

shirley
Posted By: Christine Re: On'gist report - 06-02-2004 12:01 AM
Dear Dan,

It's good to have a plan! I think it's hopeful, time-wise, that your doc is scheduling tests to "see where things stand." Scott's docs didn't bother ordering tests because they knew he only had a few weeks after that third recurrence. Up-front and honest is best. I'm glad you and your doc seem to be on the same page.

Stay stubborn!!! mad
wink

Christine
Posted By: didier Re: On'gist report - 06-02-2004 01:13 AM
Dan,
I'm at a bit of a loss for words. Your spirit and strength is relentless, and we're all here to help in any way we can. Please email me anytime for whatever reason. You know I'm here for you buddy. Talk with you soon.
D
Posted By: helen.c Re: On'gist report - 06-02-2004 05:21 AM
Dan
Take what ever treatment they offer.. that's the only way to defeat the odds..
prayers.. love and big hugs
Helen
Posted By: JOAN Re: On'gist report - 06-02-2004 08:01 AM
Dan, my prayers are with you and your family. Lots of love your way!
Posted By: Lisa in Florida Re: On'gist report - 06-02-2004 09:14 AM
Danny,

I am so sorry to hear your news. I wish wish wish there was something I could do for you. I have a luminaria in your honor at our Relay for Life on Friday night.

My thoughts and prayers are with you and your family, and all of your family here, too.

Sincerely,
Lisa in Ks
Posted By: Carol L Re: On'gist report - 06-02-2004 09:54 AM
Danny, only God knows how much time each of has on this earth. I am praying for you and thinking of you....Keep Looking Up!!! Carol
Posted By: KirkGeorgia Re: On'gist report - 06-02-2004 11:33 AM
Dan: Very sorry to hear your news. Keep fighting because there is no way to be sure until the fat lady sings. Your positive attitude can be the difference. My prayers are with you and your family. Prayer works and if it is the Lord's plan, it will work for you also. I pray he will be with you and your family as you work through this and fight it. Love, Kirk.
Posted By: John 618 Re: On'gist report - 06-02-2004 11:49 AM
Dan,

I have not been on this site long, diagnosed in early April. You have the heart of a lion. I am proud to have made your acquaintance.

Best regards,

John
Posted By: Eileen Re: On'gist report - 06-02-2004 02:26 PM
Dan,
Can't they move any faster than that on this? Why can't they get the tests scheduled sooner and why is this oncologist waiting so long to see you? I just had a CT scan of the lungs at a major cancer center. Took 24hr for appt and results from scan done at 5:PM were available the following morning. If I were you, I'd push to get the tests and appointment moved up. I'd also get a second opinion on surgery, chemo, and clinical trials at a major cancel center and I'd make that appointment now so you don't have another 2 weeks after the films are ready. Someone else just posted about having successful surgery on an inoperable tumor after getting a second opinion. How did your ENT and oncologist possibly miss all this and it get so out of control? Keep fighting!

You are in everyone's hearts and prayers.

Take care,
Eileen
Posted By: Anita210 Re: On'gist report - 06-02-2004 03:24 PM
Dan,
I admire your courage and fortitude in the face of all you are going through. You truly are an inspiration.

Anita
Posted By: Lorie Re: On'gist report - 06-02-2004 04:00 PM
Dan,
You are in my prayers day and night. Keep fighting, and as my husband says "never ever give up!". I am going to send you a story on private email. I read it yesterday and I know that the prayers everyone sent my husband's way are what are keeping him alive. You have the prayers of not only your family and friends but everyone here on the OCF...remember they are your "guards" in this fight...and they are sending loads of love & protection. You are an inspiration.
Posted By: AzTarHeel Re: On'gist report - 06-02-2004 04:13 PM
Keeping fighting, my friend. And as someone else said, keep being stubborn against this!! I, too, would advocate being a bulldog with appointments, second opinions and such -- you deserve to be at the head of the line...

Praying for miracles for you and that you would know the peace "that passes all understanding" during this time...
Posted By: AzTarHeel Re: On'gist report - 06-02-2004 04:16 PM
One more thing -- I've been reading a lot lately about nuitrition and the fight against cancer spread. I realize there is a lot of bogus info out there and it's hard to separate the wheat from the chaff, but some of this stuff also makes a lot of sense at least to my small mind (i.e. propping up your immune system with good eating, etc.)... Might be worth considering some of these "alternative" approaches in addition to all the familiar stuff, if you haven't already...

Love ya, kid... hang in there...
Posted By: Debbie Domer/Caregiver Re: On'gist report - 06-02-2004 04:39 PM
Dear Danny,
My heart and prayers go out to you and your family...I do pray for you everyday. You have and continue to be such an inspiration to me and to Dan, and to so many people on this board. I pray that they can find something to treat the cancer and for healing. Phil. 4:13 says "I can do all things thru Christ which strengthens me". Hang in there and know that you are loved!

Debbie
Posted By: Uptown Re: On'gist report - 06-02-2004 05:42 PM
Danny Boy,

I just want you to know how much we all love you and the prayers for you that are taking place all over the world. You are a true warrior and have touched me in so many ways, so many times. As everyone else has said, whatever you need please do not hesitate to ask. Somehow, someway it will be done for you, my friend.

Ed
Posted By: nancyt Re: On'gist report - 06-02-2004 05:44 PM
Dan,

My heart breaks for you and your family. Keep your spirits up and keep fighting and being as stubborn as a mule if need be. We're all here for you and my prayers and uplifting thoughts are being sent your way.

Hang in there - we need you!

Hugs, Nancy
Posted By: Marica Re: On'gist report - 06-02-2004 05:50 PM
Dear Dan,
You are the bravest and strongest man I know, as well as being one of the most generous.
3 to 6 months, "PHOOEY" they don`t know you very well!
You are being prayed for all over the world and we all know prayers work.
May your God go with You.
Love
Marica
Posted By: karenng Re: On'gist report - 06-02-2004 10:41 PM
Dear Dan, it is heartbreaking to read your news. Please remember that the verdict given by the doctor is never final. No one knows how long one lives and there are a lot of stories about terminal patients who survive much much longer than doctors' projection. My gut feeling is that you will be one of them for sure! Be strong and take whatever treatment available and have faith in it.

Karen.
Posted By: minniea Re: On'gist report - 06-02-2004 11:36 PM
Danny,
Will you and your family be ok financially? I know you just went back to work. Please let us know.
3 months, 6 months, 6 years, whatever it may be, live it your way on your terms.
Love,
Minnie
Posted By: Mary O Re: On'gist report - 06-03-2004 06:35 AM
Danny, My prayers are with you and your family.
Keep up the fight and don't give up.
Mary
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