12 weeks out still not eating rash on neck - 04-18-2015 09:24 PM
I've had a red dry rash on my neck in several places for last 10 days. Anyone experienced this? Suggestions?
I still have sticky phlegm which I spit out frequently. I sleep sitting upright.
My RO seems to think I ought to be eating and drinking by now.
My ENT got me a swallow and speech therapist and I do exercises. I can get down 8 oz of pur�ed foods and 4oz of honey thick liquid. But it takes me a while. I feel it getting caught up. Even though it's baby steps I feel I am moving forward. It feels confusing when RO thinks I should be drinking water regularly. He just doesn't seem to get the fact I choke and therapist watches me. She feels I need to be cautious as I was hospitalized with aspiration pneumonia in Dec.
I still have my PEG and my weight fluctuates even though my calorie intake is same. I am on liquid hope and do well with it.
My pet was clear but for a spot in a lung. Next scan is August.
I still have sticky phlegm which I spit out frequently. I sleep sitting upright.
My RO seems to think I ought to be eating and drinking by now.
My ENT got me a swallow and speech therapist and I do exercises. I can get down 8 oz of pur�ed foods and 4oz of honey thick liquid. But it takes me a while. I feel it getting caught up. Even though it's baby steps I feel I am moving forward. It feels confusing when RO thinks I should be drinking water regularly. He just doesn't seem to get the fact I choke and therapist watches me. She feels I need to be cautious as I was hospitalized with aspiration pneumonia in Dec.
I still have my PEG and my weight fluctuates even though my calorie intake is same. I am on liquid hope and do well with it.
My pet was clear but for a spot in a lung. Next scan is August.