Nasal Pharangial - whinning - 04-21-2007 06:44 PM
I thought I could come on here and vent - till I read some of the posts here - and I thought I had it bad - -
12/1996 was diag with this and started the chemo and radiation treatments - 6 weeks.
I have had 5 doctors tell me that I was over treated - 7000 rads
Collateral damage: soft palat does not work, throat not up to par, Hypothyroid - daily meds, salavary glands burned out along with the jaw muscles. It was 2 years b4 some true feeling came back to my hands and feet. I have to be careful when doing anything because I only notice cuts when I see blood. I now have only one tooth left - figure it will be gone within a month. My hearing is to the point that hearing aids are not cutting it. my eyesight has changed faster then would normally happen due to age - 62 last month. sense of smell is off as is nearly no taste. I used to do all the cooking - now it has to be by rote.
I am liquid diet only now. and that has to be done slowly.
I am stuck with 6 cans of ensure plus a day to stay alive, along with a hand full of vitamins that have to be crushed and mixed with yogurt and then thinned down so I can get it down, a spoon at time. No solids. they just wont go down.
I tear up when I smell fresh bread or Bar-B-Q from the neighbors.
I was forced to retire early on soc.sec. disability since I have no strength left to do anything for any period of time.
Sometimes I want to smack some people that say 'oh, but you are alive' - well there is doubt in my mind that this is a good thing.
Do I worry it will come back - not for a second - only that the excess radiation will end up messing me up again, and maybe worse.
It was a surface cancer - created from smelling industrial strenght roach spray that had been used illegally, in the place I had been staying while attending a 6 week training school. the building had to be torn down - now a used car lot. 2 deaths were attributed to the spray.
hell, I was just about to make friends with the roaches too. hahaha
I decided not to sue the Dr. at the cancer clinic due to the fact that they save a heck of a lot of breast cancer patients in this area. and, whats done is done. The dr. refused to accept the idea that the equipment was doing what I complained about at the time.
I discovered this site while researching (i was bored) the facial muscles and salivary glands in the unlikely-hood that I should ever win the powerball hahaha maybe stem cells could help ?? its a dream...
Did I whine too much for you - sorry - just venting.
If it does pop up sometime ? ! ? well... I have a 12ga. that will clear it out. wont go thru that hell again and end up worse.
I truly feel for the ones I have read here that are worse off than me. I can live with where I am - but I dont think I could be as strong as you other people.
nuff said
ted
:-)
12/1996 was diag with this and started the chemo and radiation treatments - 6 weeks.
I have had 5 doctors tell me that I was over treated - 7000 rads
Collateral damage: soft palat does not work, throat not up to par, Hypothyroid - daily meds, salavary glands burned out along with the jaw muscles. It was 2 years b4 some true feeling came back to my hands and feet. I have to be careful when doing anything because I only notice cuts when I see blood. I now have only one tooth left - figure it will be gone within a month. My hearing is to the point that hearing aids are not cutting it. my eyesight has changed faster then would normally happen due to age - 62 last month. sense of smell is off as is nearly no taste. I used to do all the cooking - now it has to be by rote.
I am liquid diet only now. and that has to be done slowly.
I am stuck with 6 cans of ensure plus a day to stay alive, along with a hand full of vitamins that have to be crushed and mixed with yogurt and then thinned down so I can get it down, a spoon at time. No solids. they just wont go down.
I tear up when I smell fresh bread or Bar-B-Q from the neighbors.
I was forced to retire early on soc.sec. disability since I have no strength left to do anything for any period of time.
Sometimes I want to smack some people that say 'oh, but you are alive' - well there is doubt in my mind that this is a good thing.
Do I worry it will come back - not for a second - only that the excess radiation will end up messing me up again, and maybe worse.
It was a surface cancer - created from smelling industrial strenght roach spray that had been used illegally, in the place I had been staying while attending a 6 week training school. the building had to be torn down - now a used car lot. 2 deaths were attributed to the spray.
hell, I was just about to make friends with the roaches too. hahaha
I decided not to sue the Dr. at the cancer clinic due to the fact that they save a heck of a lot of breast cancer patients in this area. and, whats done is done. The dr. refused to accept the idea that the equipment was doing what I complained about at the time.
I discovered this site while researching (i was bored) the facial muscles and salivary glands in the unlikely-hood that I should ever win the powerball hahaha maybe stem cells could help ?? its a dream...
Did I whine too much for you - sorry - just venting.
If it does pop up sometime ? ! ? well... I have a 12ga. that will clear it out. wont go thru that hell again and end up worse.
I truly feel for the ones I have read here that are worse off than me. I can live with where I am - but I dont think I could be as strong as you other people.
nuff said
ted
:-)
It takes the edge off when we can make jokes of our defects and situations. I think you found a home away from home here. On a serious note though, there is a prosthesis for the roof of your mouth to prevent "backwash" for lack of a better word. It's an orbitor something or other. I believe Colleen aka August uses one. I think it's to replace the hard palate, I'm not sure. You said your soft palate. I'm sure they have some type for your situation. Someone will chime in here and give you the correct name. I am sure your problem has a solution. PS. You don't have to be 8 years old to laugh when someone has something come through their nose! 
It usually happens after an extremely funny joke or incident.