Hello everyone,
I've decided to sign up to this forum in advance to getting my results this Monday.I'm a 33 year old male.I don't really know a lot about any cancer's as such as non of my family have suffered with it(luckily).I have been reading people's stories on forums of their symptoms of floor of the mouth cancer and I fear the worst because it sounds exactly like what I'm dealing with at the moment.Nothing is confirmed that it is that but I'm so scared!!

Last summer I separated with my wife.I used to drink alcohol daily until the split up..Since I stopped I noticed what I thought was a ulcer ..I didn't think anything of it until it wouldn't heal or go away.And now I have left it that long that it's all on the one side of my tounge.Have a pain in my neck,ringing in ear.I can hardly eat due to it.and have lost loads of weight.I will have results this coming Monday and wondered if anybody on here had similar symptoms as I'm so scared I don't know what to do about it..I'm so stressed.And yes I do smoke cigarettes,I need to stop but can't with all the stress going on :-(

Can anyone shed some light for me?

Hope to speak to people soon..
Tia ,
Tom

Welcome to OCF, Tom! We can help you with info and moral support.

Hopefully your results are negative. You didnt mention getting a biopsy but it sounds like thats where you are at. The longest wait in the world is when you are waiting for test results. First let me explain .... everyone is different and will respond to things in their own unique way. That goes for diseases, symptoms, medical treatments, medication, etc. Even taking 2 people who are the same age, sex, from the same general area, have the same diagnosis with the same size tumor in the same location and each one can have drastically different experiences. If another member has similar symptoms that does not mean what you have is oral cancer. Ive been thru this 3 times and have had far more biopsies (where I was certain I was sick again) that came back negative. Hopefully yours will be negative!!!

Symptoms can vary greatly for oral cancer patients. Some have ear pain, others dont, some difficulty swallowing others dont, some experience ear pain others dont. Some patients have a tumor visible where others cant see their tumor (base of tongue tumors) and some patients have significant pain while others dont feel any pain at all. I had no symptoms at all other than a visible tumor and feeling lousy for weeks like I was on the verge of getting the flu.

If you can quit using tobacco in all forms it may give your mouth a chance to heal. Ive seen quite a few people come thru here who smoked or used chewing tobacco. Once they stopped using it their "tumors" healed on their own. Tobacco has hundreds of proven cancer causing additives which can play a big part in delaying healing in any sores someone would have in their mouth. Im glad to see you arent drinking as that can play a part in delaying healing in your mouth too.

As far as smoking goes, please let this be your wake-up call and quit ASAP!!! I want to explain a little of my history to give you a different perspective. I am a former smoker so I do completely understand the stress you are going thru. I wasnt able to quit immediately when I was diagnosed. I felt overwhelmed by the thought of having cancer, no one in my family had cancer so back then I was quite ignorant about what a cancer diagnosis meant. It was on my way to the hospital for a feeding tube consult as I was reaching for a cigarette when the lightbulb went on. I realized I had done this to myself and now I could leave my children alone. At the time my kids were teenagers, luckily they werent young children but they still depended on me for almost everything. I picked up my pack of cigarettes and was about to light one when I finally understood what those cigarettes had done to me. My son was with me and I said to him... "Thats it, I quit!!!, I will never smoke another cigarette in my life". I threw the pack right out the window (I never litter either) and told my son I now know how I will die but I'll be damned if I make it any earlier than it has to be. He looked doubtful as he said "I hope you really do quit". That moment is etched in my mind. Every time I thought it wont hurt to have just one cigarette I thought of it as another nail in my coffin and less time my children had their mother. Quitting is NOT easy. Smokers must decide they really want to quit more than they want to smoke. Nobody can nag anyone into quitting. Please do your best to learn from this and try your very best to decide you want to quit. Im one of the lucky ones who have gotten thru oral cancer 3 times. But (there always has to be a but)... I have paid a huge price for my "habit". Ive lost half of my lower jaw, all my teeth, cant eat hardly anything, depend a feeding tube for over 10 years, and endured intense pain and days where Im very, very sick and of course I lost my looks.... all from smoking which was a choice, a very bad choice I made.

Im sorry if it sounds like Im nagging you about smoking. Im not trying to nag you. I dont want to see anyone else have oral cancer which in many cases is preventable.

Please let us know how you make out with your biopsy. Best wishes with everything!!!!

Hi Christineb,
Thank you ever so much for the in depth reply,and let me say I'm sorry you have had to fight through oral cancer three times let alone once.I applaud you for being here giving people like me advise!it's very much appreciated. So glad you fought it off each time. And sorry if I wasn't very clear in my first message.I have had a biopsy yeah,and I go back to the hospital on Monday to finally find out what it actually is. I keep on seeing pictures on cigarette packets that I'm still buying of a type of mouth cancer and I'm sure it a sign telling me to stop buying these stupid cigarettes because my own mouth looks so similar to the picture on the packet. Ah I see,that I didn't know about with there being so many different types of the sane thing.. Yeah I've completely stopped drinking altogether and had no idea how big the risk factor was just from drinking alcohol. I thought about trying the vape pipes out but don't think that will be any better for my mouth at this point.I have had issues with drugs in the past and know that you have to really,really want to stop before even trying, which is why I'm still smoking at the minute. But come Mmonday I think that will all change for me as I do fear the worst. I do have a picture of my mouth but think it may be to graphic and not sure it's actually allowed. I will post back what happens on Monday. Wish me luck,thanks again for being so kind

Tom

Thank you for not posting your photo. Since our members do not have medical training, looking at photos would not tell us anything you havent already. Even doctors with years of schooling and clinical patient experience are only giving a guess when they look at a sore, lump, bump, etc. Of course the physicians guess is an educated guess, its still only a guess. Only the biopsy will determine for certain exactly what the lump, bump, sore is.

Waiting is the worst!!! Try staying super busy doing positive things to help pass the time. Whenever you find yourself dwelling on the "what if's" only allow a few inutes then physically get up and "change the channel". Go do something positive that will keep your attention so you dont continually agonize over the test results. Remember, worrying has never changed a test result or helped anyone to feel better. All it does is make you upset. Stress like this is detrimental to the patient and can alter their perception of their medical condition. I used to clean out my closets and dressers whenever I started to "go there".

I really recommend to NOT do vaping. Studies have been proven that many of the one that claim to not have nicotine actually do have it. The e-cigs havent been around long enough for any long term studies on the effects of using them. Best thing is to completely avoid all forms of tobacco. No matter what the results of your test are, please do your best to eliminate tobacco from your life. Quitting is a change that will help you have a much healthier and longer life. Continuing to smoke or use tobacco will eventually cause you health problems. There are millions of people in the US who are living with life changing preventable medical issues from using tobacco. One of the things Ive done since going thru cancer caused by my smoking is to do presentations at schools, talking to children from 3rd grade thru college. Ive talked to thousands of kids and hopefully have made in difference in some of their lives. Hopefully by talking to them in person will help them to understand the dangers of tobacco. If they dont start then they dont have to quit. Sorry about rambling on about smoking, again! I wish you all the best when you are ready to try quitting. Its not easy but if you make up your mind to do it, you will succeed.

Update.

Just got back from hospital for biopsy results and it is mouth cancer.I have a CT scan tomorrow then talk through plans next monday.I can't do this,I haven't got the strength..

You CAN do this.

I don't know much, but I do know this.

You can do this.

I got to this road by who knows what ... no smoking, no alcohol, no known risk factors at all. But we all end up on these forums the same way ... we get that biopsy and get scared. And somehow we get through it.

Breathe deep and go eat your favorite ice cream. No known cancer factors there, and the cool at least helps the pain.

Sorry that it’s not the news you were hoping to get, but you don’t know yet what the treatment plan is, if it’s going to be surgery, radiation, chemo, or a combination. There is nothing yet for you to take hold of, learn about and prepare for. I can understand how this is fear-inducing. Once you have your treatment plan, I would encourage you to focus on what you can control, which is to learn as much as you can about your condition and treatment, line up support for yourself at home and to focus on your intake. It will be an uphill climb but you will be able to take it one step at the time. If you apply yourself to that, things will seem more manageable and you will feel more in control. Make “I can do it” your mantra.

Tom, Im very sorry you were diagnosed with OC! I know its shocking even if you anticipated getting bad news. One the positive side, you've already found our site. We're in your corner and will do our best to help get you thru this as easy as possible.

Take a deep breath and take this one step at a time, one day at a time. Focus on what is within your control. Start trying to push yourself to eat more to gain back the weight you've recently lost. You will want to eat all your favorite foods, desserts too before you get treatments. I know you probably dont feel much like eating but this is something positive you can do to help you to get thru it. You are young which is a big advantage too. The younger the patient is, the quicker their body can bounce back.

Your next few weeks will be a flurry of appointments. Your doctor will need more tests to determine what stage you're at and develop a treatment plan. Im not sure where you are located. If you can get a second opinion at a Comprehensive Cancer Center (CCC), start making calls to set it up. CCC's are the best cancer facilities with top doctors who use a team based approach so all the specialists are on the same page.

There's a few things to keep in the back of your mind (like you needed more to think about right now!) as you begin getting set up to get your cancer treated. Sometime prior to starting any treatments you will want to get a thorough dental exam and any teeth that arent in the best shape needs to be addressed right away. You will also need a complete blood test including testosterone and thyroid levels. It may seem like its something minor but it really is very important to get your baseline numbers now so your doctors know what range is normal for you. Down the road its not possible to go back and get the levels so make certain you take care of this before any treatment begins. As you begin to tell people about your illness, most will ask what they can do to help you. Tell them when the time comes you will let them know. Write down every single people who offers assistance with all their contact info. You will need to line up at least one person to help get you thru this so start thinking of who you are comfortable with having take care of you. You will need help even if you are able to sail right thru any treatment without any major side effects, you'll still need some help. That was something I really struggled with and paid dearly for being so stubborn and independent.

I recommend reading posts here and also on the main OCF site to learn about your illness. Click on the OCF Website link on the bottom of any page. As you begin telling people, brace yourself for all kinds of unsolicited advice and tips (most of which are NOT correct medical advice for our type of cancer...usually its squamous cell carcinoma SCC) from well meaning friends and relatives. Seems like almost everyone out there knows tips from a co-workers relative who's aunt went thru it and they just must tell you about it. You'll hear some really way out there things you "must" do that will get rid of the cancer the "all-natural" way without going thru conventional treatments. Just smile and politely say thank you. Luckily you have us to lean on and we'll be honest and give you correct up-to-date medical info as much as we can. We're OC patients/survivors and caregivers we do not have medical backgrounds but we have learned first hand what info we relay to you. Only surgery and/or radiation with or without chemo is what will eliminate OC. There is not anything at this time that will be an easier, less invasive way to get rid of the cancer besides those options. Chemo alone will not eliminate it but it can help to shrink tumors and make the radiation more effective.

Im sorry if I threw too much info at you. Im just trying to help you to make it as easy as possible. Hang in there and please do your very best to avoid smoking.

Hey Tom,
I just wanted to tell you that yes you can do this, and you’ll be shocked at the strength you didn't know you had. I am also 33 and a year and a half ago was diagnosed with stage 4 base of tongue cancer. I did the chemo and radiation, and it sucked, but I’m fine now. One year cancer free. I know everyone’s experience is different, and every doctor is different, but here in the beginning stages just remember that they have to tell you all the terrible things that can possibly happen. Try to stay positive despite it. I know it all seems impossible now, but you can do this.

Is there anybody around to talk to?I need to ask something urgent!!

I'll just ask regardless..I seem to coming out in a rash on my neck arms and face,it's really itchy.I've never suffered with any kind of rashs before.is it related anyhow?!I saw doc yesterday for it and gave some tablets but I thought it was due to the dye that they inject for scans but I'm starting to think it's related to my cancer somehow.Can't phone helplines as there all closed.. so stressed here ,my goodness :-(

Sure!

Of course I’m not a doctor but If you had a contrast ct scan it might be an allergic reaction to the dye. That can cause a rash.

Also, I know when I was first diagnosed and before I started treatment, I thought everything that happened to me was related to the cancer. Like I had an enlarged lymph node in my armpit and panicked for 2 days before I could get in to see my doctor that it was because the cancer had spread. When I saw her she said it was just a reaction to an infection in my body and nothing to worry about. And she turned out to be right. I’m not telling you to ignore things. Of course you have to see a doctor. I’m just sharing my experience of linking everything to cancer when it’s not related. Try to keep calm until you’re sure what something is.

I had a mri scan last week and a CT scan Tuesday..I did read o line that it can be a side effect from the dye that's used.And then today I read that it can be cancer related but wasn't to sure on that info..Thank you for the reply..

Yeah I can relate to that absolutely definitely..

if I can give you a piece of advice, it’s to keep a notebook or open a new note on your phone specifically for questions you want to ask your oncologist. When I got sick a friend of mine told me to do that and it was a lifesaver. You’ll think of a million questions all day every day, and then sometimes when you actually get into the doc’s office, you’re overwhelmed by information and can’t remember any of your questions. You also get so much information at various appointments, it’s hard to keep track of everything. I found that writing it down so I could refer to it later helped a lot.

JR’s suggestion of putting notes on your mobile is a really great one. I use a linked notebook and wrote down all the questions I wanted to ask.

The dye can cause an allergic reaction, you should let your doctor know at your next visit, at least let the MRI tech know before your next MRI.

Definitely keep a notebook.

Contrast can cause a reaction, and you're going to want to know that for future reference so you can avoid it if necessary. It is also possible to have stress hives (I get these at times), though I think those are more likely in folks who tend to already have funky immune systems. I haven't researched it. But I have certain spots that break out specifically when I get stressed (separate from shingles, which I have also had) and I can tell them from allergic reactions because of the location.

Im sorry I missed your post about not being able to call about your rash. Are you in the US? If so there is always a doctor on call 24/7/365. Ive called a few times in the middle of the night and the answering service has had the doctor paged and he calls me back, surprisingly its usually very fast like in 2-5 minutes. It must be serious if it is bothering you enough for you to take the time and effort post it here.

Any rash that you feel is swelling sounds like it could very well be an allergic reaction. Be careful!!!! If you feel your throat is tightening up or its affecting your breathing get to the ER or call an ambulance. An allergic reaction can be a serious medical condition that requires prompt medical attention. Do you live alone? If so call a friend or relative to stop over to give you a hand. I always err on the side of caution with things like this and get checked out. Better to apologize later than have a medical emergency.

I dont have a medical background but I seriously doubt an itchy rash would be related to cancer. It sounds to me like its a reaction to something new you have introduced to yoru body. It could be any number of things besides the dye. Maybe you ate something that didnt agree with you? Regardless of what the cause was, you should get it checked out ASAP. Benedryl can help with the rash and swelling. Ive taken childrens liquid allergy medicine many times for things like this, its always helped me. Next time you see your doc make certain you talk about this and ask if benedryl would work for you in your situation.

Please let us know how you make out. Good luck!!!

I have seen a doc..given me allergy tablets,been on them three days..not really doing anything to be honest..Am I aloud to share the link where I read about skin rash that may be related to cancer ?would like to show what I saw and see what you guys make of it if that's possible ?

I would strongly recommend going to your doctor and asking him about it. The guessing game is really not reassuring in any way.

I have been to my doctor about the rash?I did state that he prescribed tablets for it previously..I'm due to go to the hospital on Monday to be told what stage /grade/treatment is be done moving forward.I will be showing them this rash..And yeah the sun is a newspaper/tabloid in the united Kingdom.I'm not playing a guessing game win anything as its my body/life.I don't really know much about all this as you can most likely tell,hence the questions.I will be writing everything down prior to my hospital appointment as someone suggested and it's a great idea.Thank you for the reply's everybody..I know no-one is a doctor here,I just thought maybe somebody may of had a silmar thing happen once diagnosed or when having a dye injected prior to mri/CT scans may of had a reaction to it.forgive me if I'm coming across as dumb here!

Will be back after hospital appointment..
Thanks guys/gal's..good night..
Tom x

Im sorry we arent able to help you more with what you have going on. As you know our forum is made up of oral cancer patients/survivors and their caregivers. All of us are without a medical background, we simply are not qualified to give an opinion. The best resource should be your physician. They hopefully will be able to get to the bottom of what you have going on. You are NOT being dumb!!! You are upset (which is perfectly understandable), worried and would like to have some guidance to help you get to the bottom of what you have going on.

Let me explain something else thats important... Everyone is an individual and responds to things in their own unique way. No two people are the same! That said, take 5 people who are the same age, sex, from the same location, same type of employment and social habits, same weight, height, ethnicity, even the same hair color and eyes. Those 2 people on paper appear to be almost identical but... those 2 people are still individuals who have their very own body chemistry, heredity line, dna, etc. Its like comparing apples to oranges. Ive seen it time and time again with members who have the same tumor location, diagnosis, treatments, etc but those 2 patients will have polar opposite experiences with their reactions to treatments and recovery. Maybe this factors in as why all those clinical studies need so many participants? My guess would be they need to get a better understanding of every little thing and only can do so thru a large sampling of participants.

Since the newspaper/tabloid is where that info came from, Im sorry but its not a medically reliable source and I must remove the link. Without a medical degree, years of medical school, etc we would not be able to help you even when given an article and photos. We arent the right people to be able to figure your symptoms out with anything more than a guess. Posting a link to a tabloid's article and photos is against our ethics code. We are Health on the Net certified to only give correct and up to date medical advice, among other things. This is an honor for our site to be part of that group as its not an easy thing to earn their approval. Only reliable medical info can stay on our website.

Please let us know how you make out. If you have a friend or relative who can go along just to listen and take notes that would be a great benefit for you. Too often we focus on other things and our ears stop working during important appointments. Stay strong and good luck tomorrow!!!

The doctor you saw probably knew it was an allergic reaction to the dye. But ask your oncologist just in case as they are specialised. What you’re going through is scary and frustrating. I think everyone just says “I’m not a doctor” because no one wants to give you bad advice. Good luck on Monday, and remember that they have to tell you all that could possibly go wrong during treatment. Doesn’t mean it actually will. And google is not your friend when it comes to this illness as everyone’s experience is so different. For example, when I first thought I was sick, I read lots of stuff about how painful and terrible an oral biopsy was, but it didn’t bother me at all. I read how terrible an mri was, but I took medication to ease my anxiety and was fine during the scan. Just because someone else finds something intolerable doesn’t mean you will. I know you want to be prepared, but try not to read too much about other people’s opinions as they may end up needlessly scaring you even more.

If it's still a reaction, go back to your doctor. Some reactions do need more treatment, and whether that's what this is or not, the doctor is the person you need to talk to. I'm *not* a doctor, but I have had lots of allergy reactions over time, of varying kinds, and have needed a wide range of interventions. So if it is a reaction ... you need more medical help, and a doctor can do that (steroid shot or things like that). If it's not an allergic reaction after all, the doctor is still the person who is your contact point for your health concerns, and this is something you want in your file, right? Hives are not always a bad thing, but it's bothering you, so it needs to be dealt with, or documented, or whatever. And consider this ... if you are reluctant to go back to your doctor for this, is he the right doctor for you for anything bigger?

Folks here can't give specific medical advice because, as Christine wisely pointed out, every single human is different. Even if we were doctors, it would be bad practice to do so over the internet, anyway. But we CAN point you back to finding the specialists and trusted physicians in your area who will support you in your journey, and we can cheer you on from here with whatever it is you end up dealing with.

The doctor I saw for the rash was not my main doctor at my clinic,it was just someone that I could see asap for an emergency appointment...

I have stage 4 n1 oral cancer,and is operable,was told this today.It hasn't spread to my lungs which I am extremely lucky due to how long it's been there.There was all kinds of different people in the room wanting to go through different things with me,diet,medical history,dental history,speech therapist,care worker,and two surgeons.All got a bit much for me to take in at once and finishing the rest tomorrow so I don't forget most that's said to me..My mom is always with me each time I go.tomorrow I speak to surgeons to talk in depth about the process that I'll be taking surgery and treatment plans.so all in all,great news all things considered..
I'll post back tomorrow..
Thank you all for the support once again ..
Tom x

Wow. That's a lot for one appointment, but I'm also kind of impressed they had all those folks on hand at the same time to help out. Take notes. Make THEM take notes and hand them to you. (Worth a shot!)

My speech therapist is someone I should have started seeing a lot sooner after my treatments ... she turned out to be worth her weight in gold not just for speech and neck issues, but also as a sort of informal mental health counselor and someone who could give tips on migraine headaches and particular massage motions. (They cover a lot of issues in her office.) Just plain a really nice lady. I'm due for one final assessment, but have been awaiting my new teeth for that. Anyway ... that'll be a person you won't need right away unless your surgery is extreme, but could be someone who becomes your new best friend. I hope yours is as good, thorough, and kind as mine has been!

Diet person is someone to talk to after you understand your surgery. Make 'em go in order, if you didn't figure that part out already. Teeth first (especially if any chemo or radiation is in your future) and surgery are first. I'd guess the care worker and the diet person would be next up, as that's recovery stuff. And then that speech therapist, who can't do much till you heal. (Unless, as I said, it's something you start while in hospital.) Then at least you get a sort of timeline to your notes as you're going, if that helps. And gives a feel of control over some of this.

Good luck and hope the next appointment isn't so overwhelming!

Im very sorry your diagnosis was not benign. You're smart to take your mother along to your appointments. That extra set of ears is priceless when your ears stop working. Make sure your mother takes notes for you to later go back and go thru. Some doctors will allow the patient to tape their session. In extended appointments like what you went thru that would be a very important part of your appointment. Ask your doctors permission if they mind you taping your session so you can go back and review things you arent clear on. Also ask for all your records to keep copies of every appointment, with every specialist. You want to begin a paper trail so you can go back and read thru things if you have trouble understanding anything.

Just remember... stage 4 is NOT a death sentence, even if it has been there for a while. I know many Stage IV survivors who have gone on to live full meaningful lives. I was diagnosed for my third round of OC as Stage IV and somehow I survived even having very low odds of survival. We're here to help you get thru this. You are ahead of many OC patients as you have been reading and learning about your illness before it was even diagnosed. That will make for a strong advocate! Dont worry, we will be in yoru corner every step of the way.

Best wishes with everything!!!

Hi again guys/gals,
I'll start off saying I'm so happy I decided to stop half way through the meeting of everyone involved in my treatment as I wrote all my questions down last night after the hospital sessions yesterday ready for today.And felt I got everything I wanted to know for now,and I was fresh minded and took so much more in today.I can't thank you enough for that suggestion,it really did help me.

Right ok..

Thursday I'm having pet fitted then come home..Monday I go there for Blood's in the morning,then go back later on to get a bed for the night,if there isn't one I'll go back Tues morning..surgery is Tuesday ..And the process involves,taking part of my tongue out along with tumor,part of the floor of my mouth,maybe gums on that side but definitely teeth on that side even though there's nothing wrong with them.(had an dental X-ray today before seeing surgeon)they take part of skin from my wrist to use in exchange,then take skin from stomach to put on wrist then sow stomach up,get lymph node out,fit a breathing tube through my throat along with a voice box as temp whilst mouth heals.so much just for one area to be operated on..they've obviously had to go through all the things that may happen and yes it could become very messy.I won't be able to use mouth for 7/10 days..had to sign the form to ok all the surgery..will be radiotherapy afterwards depending how it all goes and may be on that for 6months in worst case scenario..will need around 8 months off work,again worst case scenario..I may be able to come home after 10/11 days but that all depends how it goes and how the healing does..that's the majority of it from today.Oh and I got some patches to try out prior to next week which I thought was appropriate to do as I HAVE to stop this terrible smoking habit now I am being given a second chance of life and this time I ant to be smoke free..

I won't lie I am terrified of what's going to come but I must man up and beat this disease and become a survivor,then run with what life I have and like it to the fullest I physically can!

Will be posting my progress as its happening,thank you all so much again,much love..

Tom x

Hi Tom,

Good for you, getting all the info down and being clear about them. It can be pretty confusing to someone who is already/ anxious. The treatments seem to be par for the course but I was a bit surprised about your getting radiation for six months, are you sure it isn’t six weeks?

At this point, I would go out and eat all my favorites foods if I were you. Indulge. It will be a while before you can enjoy them again. Have you lined up other supports like having someone driving you to and from the hospital and to look after you a bit at home?

By the way, did you talk to your doctors about your rash? You will be getting quite a few CAT scans over the next little while; if it is the contrast (dye) that’s causing the problem, you really need to let your doctors know.

You can do it, it is tough at times but you can do it.

Hi there,
I do apologise I got that mixed up with the radiotherapy,it is for six weeks..I was told I'd need around six to eight months off work and got the two crossed like a plonker.It was a lot of info in one go though to be fair.
I have my mother to take and pick me up from hospital at the minute yeah..
Today I have been to have the PEG fitted in preparation for next week.Was sedated at the time they did it,I must say it was very uncomfortable for me and is rather sore St the minute..I am back home eating and drinking as normal until surgery is done on Tuesday.I am so terrified of this even tho I know everything I need to know.I just know I won't look the same,speak the same,But must be done to get rid of this tumor.I just know how hard this is really going to become now!! :-(

Did you find someone to help? I'M one yr out