Posted By: Shelley K 5 Year's out and possible recurrence?? - 12-10-2009 08:46 PM
Hi Everyone,

My husband Ron has been cancer free for 5 year's. I was starting to relax and think OK, this is good, what are the odds the beast will come back? Well a spot in his throat has been bothering him for the past couple of months. To be on the safe side he went in today to have it checked out. The doctor at UCLA is concerned so they are going to do a biopsy in January....needless to say Ron is scared....I can hear it in his voice. My stomach is in knots right now too.

Ron asked the doctor if it is cancer can it be removed with no problem and the doctor said yes, which is good. I always thought that if you made it to this point you are pretty much home free...I guess not. I tried to reassure him that it isn't cancer until they say it is and I'm praying it isn't. I've just realized that with this type of cancer you've always got to be on guard. If it has come back at least they caught it early....thanks for letting me vent.

Shelley
Posted By: davidcpa Re: 5 Year's out and possible recurrence?? - 12-10-2009 10:53 PM
Why do they have to wait until Jan????

Do they not understand the mental process we go through? Well they SHOULD. They are supposed to understand what we go through. I would tell them NO I WANT IT DONE ASAP!!!
Posted By: Shelley K Re: 5 Year's out and possible recurrence?? - 12-11-2009 12:02 AM
Thanks David, I will let Ron know and see if he can have it moved up. They have scheduled blood work on 12/28/09 and then the biopsy is scheduled for 1/8/10. My thoughts were....it must not be that urgent or they would have made the appointments asap. But you are absolutely right. As always, thank you so much for your help.

Shelley
Posted By: Charm2017 Re: 5 Year's out and possible recurrence?? - 12-14-2009 03:15 PM
Shelley

I have mixed feelings about moving up the biopsy. When a tongue "lump" appeared in less than year after TX, it was November. My ENT was concerned but we decided to schedule a MRI for January 2nd so I could go through the Holidays still celebrating being "cancer free". I am so very glad now that I did. The one month delay had no real negative impact on treating my recurrence and I had the most wonderful Thanksgiving and Christmas in a very long time even though I was fooling myself. Like Lily Tomlin says:
[quote]
Reality is the leading cause of stress among those in touch with it.[/quote] Just a different point of view.
charm
Posted By: Shelley K Re: 5 Year's out and possible recurrence?? - 12-14-2009 03:55 PM
Thanks Charm. For Ron's piece of mind we were able to have the biopsy moved up to December 22nd.He's having blood work done tomorrow. Even though it's right before Christmas, the way Ron is, he will feel better mentally knowing it has been done. I still keep thinking it must be something other than cancer. Ron is always diligent about checking things out when his body (especially his throat) doesn't feel right. So if it is a recurrence, he caught it early. I will let you know what happens.

Thanks again,

Shelley
Posted By: Shelley K Re: 5 Year's out and possible recurrence?? - 12-21-2009 04:02 PM
Ron had blood work done last Thursday and it came back showing his sodium levels are too low. We don't know if it was an error so he had more blood work done Saturday morning. At this point we don't know if the surgery will have to be postponed or not. I looked up "low sodium" and it appears to have to do with his electrolites. Because of his dry throat, he does drink a lot of water and because of that, he urinates a lot. Does anyone have any knowledge and/or suggestions on what he can do? He will talk to the Doctor later this afternoon, but wanted to post this to all of you folks too. Any thoughts you can give would be appreciated.

Thanks!

Shelley
Posted By: TomT Re: 5 Year's out and possible recurrence?? - 12-23-2009 03:51 AM
Hello Shelley, looks like you have probably already talked to the doctor. Not sure if your husband has a PEG but when my wifes sodium was low her doctor suggested flushing her PEG after eating with salt water and adding in some Gatorade to drink instead of just plain water.
Posted By: Shelley K Re: 5 Year's out and possible recurrence?? - 12-23-2009 06:24 PM
Hi Everyone,

Ron got his sodium levels up (drinking lots of V8 Juice and Gatorade) so they were able to do the procedure yesterday. The Doctor came to see me after the surgery and said the lesion was not ominous like he originally thought. They did the biopsy to be on the safe side, but he was cautiously confident it's not serious. Thinks it may be an infection so they sent him home with antibiotics. We are both so relieved! That was one of the longest days of my life. It's going to be a merrier Christmas around our home this year.

Thanks again,

Shelley
Posted By: Kelley F Re: 5 Year's out and possible recurrence?? - 12-24-2009 12:16 AM
Congratulations on the good news. Your Christmas will definatley be merrier with that load off your shoulders. Here's hoping the New Year brings you both continued good health and happiness.

Kelley
Posted By: Shelley K Re: 5 Year's out and possible recurrence?? - 12-24-2009 04:58 PM
Thank you so much Kelly! All the best to you too.

Shelley
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