...left a hole after surgery. I did not realise how deep it was. They put a skin graft there to keep it shallow I thought but it must have come off. This hole collects food and plaque apparently. I bought a water pic so I could pressure wash this void in the base of my mouth. Amazing at the little bits of food that rinsed out.

Now when I look in there with an LED light I see a hole that is pretty deep and it has turned black or dark gray at the bottom and appears to run up my gum to a tooth I tend to bite down on alot making it sore.
I see my surgeon on Tuesday. For my first post Tx follow up. I hope he can explain this with out imposing another round of punishment to my mouth.

Praying the water pic is JIT. (Just in time)

Another biopsy.... another wait and see.

We're waiting with you. Any idea when you might hear the results?
Until you do, keep very busy and don't let cancer steal the "waiting days". It has already stolen far too much from us all.

Donna

True words were never spoken Donna. Do you remember the song. THe Pretender ?? That had to be written for all of us. THe same as the one" Pretend You're Happy When You're Blue" Have a great day all.

Can't forget this one. " HE ". This one covers it all and it's from the 50s. This song was played on a troop ship from Japan to the US and one that didn't grit the nerves when it was played for maybe the 20th time. LOL I can still hear it but can't find it anywhere.

Thanks folks. I was supposed to start work today but the disabilty company had not processed the paperwork for me to come back part time. I was surprised by my boss bgeing there since he works out of Texas. I am in Virginia. I decided to continue to be 100% upfront with him and told him about the biopsy. Now the good part:

We talked a little about religon and I explained how I just could not find any thing to believe in. I have been trying and reading all sorts of stuff for years, not just since cancer. To make a detailed story a little less detailed he actually explained some Christian concepts to me that made a lot of sense. I was totally surprised by what he was saying to me. He took the time this morning and showed me how to give myself to Jesus and how to pray to God. We prayed or he led me in through a prayer to god on behalf of Jesus.

This subject is difficult for me to discuss because I have been dangling in search of some kind of faith and spirituality. Today I left work of all places feeling like I now have a connection or starting point for finding my faith.
Gifts are sometimes wrapped in unusual wrapping paper....

Is this the song: From Wikipedia:

He" is a song about God, written in 1955, which made the popular music charts in that year.

The music was written by Jack Mullan, the lyrics by Jack Richards.

Best selling records were made by Al Hibbler (reaching #4 on the Billboard charts) and The McGuire Sisters (reaching #10 on the Billboard charts) in 1955. A later version by The Righteous Brothers reached #18 in 1966.

Tammy Wynette did this song if it is the right one. You can hear it here:
http://www.metrolyrics.com/he-lyrics-tammy-wynette.html

Lyrics by Al Hibbler

He can turn the tides and calm the angry sea
He alone decides who writes a symphony
He lights ev'ry star that makes the darkness bright
He keeps watch all through each long and lonely night

He still finds the time to hear a child's first prayer
Saint or sinner calls and always finds him there

Though it makes him sad to see the way we live
He'll always say "I forgive"

He can touch a tree and turn the leaves to gold
He knows every lie that you and I have told
Though it makes him sad to see the way we live
He'll always say "I forgive"

He forgives

I would suggest that you call the surgeon to tell him that you think that the graft might have come off. He might want to see you before Tuesday.

Also I would ask if he thinks that the water pik is a good idea. I'm not sure that it is, as the pressure may be making the hole deeper.

The graft has obviously come off. An ulcer is living there in the surgery area. My doctor biopsied it Tuesday and it came back negative for Cancer.

Since the biopsy I am in a tremendous amount of pain. The doctor prescribed the 5 -500 vicadins. The pain is so bad that I just called the doctor on call and asked if I could drive 2 hours to see him for real pain relief. Last night they upped the vicaden to 7.5 - 500. No help.

I have taken 2 30mg morphine, 2 7.5 vicaden, 2 percosets trying to get ahead of the pain and nothing is working.

My jaw is swollen around the area and the gum looks like dark red bruise spots are on it leading to the surgical pit in my mouth. The doc from last nights call said the ulcer is non- infectious.

All I know is that saturday I was barely taking pain meds and now I am counnting the clock for the next dose. The current doc on duty has suggested I go to the emergency room if taking two more vicadens doesn't help in 3 hours or so. OR manage till the pharmacy opens for some anti-imflamatory drugs.

OK.... I'm done. Sorry but it is less painful when I am boring everyone with my complaints. Kidding .

I have called my GP describing this, they called my cancer doc who did not call back after leaving a message saying they would, but no one seems to want to look at this as if something else might be wrong. Everyone is assuming someone else knows what to do .

OUCH Sorry to hear about all that pain. I'm NOT a doctor but with all that Tylenol in your Percocet & the Vicodin, you could ask for oxycodone straight without any more Tylenol and add that to the mix. I found the 20mg sustained release ones balanced out the other pain pills well.
I assume you are on PEG?

I don't think I am on PEG. I am actually doing very well and had almost stopped taking pain meds. I find that normal pain from treatment tends to get worse over time if I stop taking pain meds so I was taking moorphine one a day or less. After Monday, the biopsy, it is a different story.

Today I picked up Tamerol(sp) and an nsaid. Tamerol is making nauseaous and I can feel the pain sneaking up on me. I got some control over it last night after taking two more vicaden.

I am waiting for Monday to call the doctor. I am going to ask him if I can talk to him for a while instead of residents. I don't think residents have the experience to understand this kind of pain.

I know several people with cancer histories and the one thing they do not complain about is accessibility to pain meds. I have been complaining about pain trying to get doctores to look at the reason but now am thinking that I should not have to endure this if medications are available. 4 months is enough of this.

Thank you. I mostly want to vent and appreciate getting to do so heer.

First of I am glad that you know a little more about Christ. I will tell you if it wasn;t for Him and all the prayers by my Christian friends I would not be making it today. Secondly, I am glad your biopsy came back negative and I am so sorry about your pain. I wish I knew how to help you. I know that since my surgery I hav experienced horrible pain, and have also found out that I am allergic, hydrocodone, oxycodone, anything in the codone family.

I have been seeking to fill a spiritual void for years. I have purposely looked for the unusual instead of what was in front of me. I am stufying the bible now. I like it. I put a study bible on my Kindle.

As for doctors and pain: I went back to the doctor to discuss pain I thought. They did everything to avoid that subject. They put me off of the medication discussion by ordering another scan. 2nd in 7 days.

The resident there refused to write a prescription and told me to take the morphine I have. Even though my doctor just told us both that morphine was not the best solution for oral pain.

My doctor told me to keep my mouth shut and not worry about asking too many questions.
I settled for strong nsaids and tramadol just to get something new to try for pain.

My counselor is not suggesting I see them again. She is arranging for my radiation oncologist to help me with life after treatments.

I am seeking a second opinion because the pain is not going away and my jaw is swelling, although slightly.