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Gabe #99469 07-14-2009 06:43 PM
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Pete, its good that your daughter is there with you. Hows the critters? Glad to hear you are coming along even if your progress is slow, its still progress. It sure has been a long road for you. I used a dry erase board too, and will be using it agin this time around.

Gabe, how are you feeling? Hopefully better and better day by day. I saved Patty's announcement too. Its here somewhere. I still keep in touch with her friend Lisa. She was her source of support thru this til the end and even after to carry out Patty's wishes. Thanks for your support, I hope you know that I have you in my prayers too smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #99493 07-15-2009 06:21 AM
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Christine,

Come on down to Gulfport. I'll let you draft behind me (cuts exertion down 25%) and it's mostly near flat except for those nasty speed bumps!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99524 07-15-2009 02:32 PM
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I just have to say this and maybe get banned from the forums, LOL But David, the speed bumps have a name, they are called boobs LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #99527 07-15-2009 03:17 PM
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Boobs?? Where did you come up with that?

Have you increased your meds??


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #99531 07-15-2009 04:59 PM
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It does sound like Jim may have increased his meds...lol Good one David:)

I think we can agree cancer stinks...being positive is hard sometimes, but needed and we have each other to lean on when the going gets tough.

We all miss sweet Patty but this is just another bump (boob if you are Jim) in the road for Christine. We will be here every step of the way. Christine, I'm serious about whatever you need. You tell me. no matter what it is. Grocery shopping, insurance companies, driving you wherever you need to go. If you prefer to do this stuff your own way I understand. But please, don't be in need of something and not ask.

You know we all love you very much!!
xoxo


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #99537 07-15-2009 05:17 PM
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Christine, the critters are doing fine. I take them out in evening when I am getting ready for bed and put them on the bed, so they get some exercise. So far they haven't used my bed as a bathroom, but they are males so it's probably just a matter of time (Females are much better about that!). As I pour my food into the 'Roo bag, I let them lick the edge of the empty can -- They certainly seem to like it.

David and Jim, here's a German Speed Bump:
http://www.youtube.com/watch?v=eBDQPYcyjqs


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #99542 07-15-2009 06:23 PM
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I'm still laughing Pete Now that is what you call a speed bump fo sure.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #99543 07-15-2009 06:25 PM
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Christine, after they have my plan of action or whatever and it's complete. I am going to drive to Allentown and visit you. We are good friends and a friend needs a friend.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #99546 07-15-2009 06:37 PM
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Posts: 1,301
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Hi Christine,
Good to see all your friends supporting you here. If I wasn't so far away.......
Thanks for your good wishes and I am getting better every day.
Just over 3 weeks since surgery and I hope to finally be allowed to drive next week.
I have also been lucky to have family and work collegues help out with shopping and the hospital organised someone to come in once a week to do some housework.
Am kept entertained by my single female Cockatiel who laid her 4th egg this morning. Sitting on them but hope she will lose interest soon as it will not come to anything confused
Love
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #99555 07-15-2009 07:20 PM
Joined: Jan 2008
Posts: 706
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Christine- I'm so sorry I didn't read your post sooner. I only come back here from time to time and was shocked by your news. I will call you tomorrow and try to catch you at home. I will definately come for a visit soon. Will get your address and firm up a date when I speak to you. I will be saying a special prayer for you my special friend.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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