#99438 07-14-2009 08:06 AM | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | John got his PEG removed last Monday. They had a tough time getting it out. We thought it would be a "simple" procedure like everyone else seems to have but not so. They couldn't get the balloon to deflate so they had to numb his stomach and use an ultrasound guided Angio needle stuck in his stomach to deflate it. John was just wondering what it will eventually look like once it is totally healed. He has had no weeping or anything from it but he is worried that he will always have a hole there.
Last edited by slim; 07-14-2009 08:06 AM. Reason: spelling
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Bummer about the removal! Yes, there will be a crust like scab that forms on hole ( raised above surface ). Mine sealed immediately and healed completely within a couple of weeks. Really have to look for the place to find it now ( I'm no ape but I do have a bit of fur on chest and stomach! ). Glad to hear he's on the road to recovery!!!
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wanda, Im sorry your husband had a rough time with the removal. I havent heard of anyone going thru that before. I didnt have the balloon tip like he did. My doc just yanked and it hurt like heck. I couldnt even breathe it hurt so bad. After a couple minutes I sat up and immediately felt so much better with it gone.
Mine has been out for several months and its healed nicely with just a very small pink spot visible. Its about the size of a pencil eraser, but flat, it looks like the spot will completely dissappear in time.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2009 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 32 | Mine has been out about three weeks. Luckily an easy removal. Right now it is healed but it looks like a have two navals.
John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I almost wrote about that, but didnt want to make light of this or scare anyone. It does look like 2 belly buttons at first. The spot will shrink as it heals.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | My first two healed like a double navel except longer and not as deep.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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