| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ray,
One, I could never carry a 50 lb bale of hay under one arm so I guess that's good?
Two, I never could sing except after way to many beers;
Three, You are at the infant stages of recovery and everything you have mention will improve greatly over the next 2 years. I was 15 months post Tx before I was finally satisfied with my taste and saliva recovery and even then they both seemed to improve slightly at 24 months post;
Four, along that line keep trying old favorites because as I said things will continue to improve and you will reclaim those favorite flavors for the most part;
Five, Strength and stamina will slowly recovery so don't push it and don't expect to bounce back like you're recovering from a bad case of the flu. I was back on my bike in my 4th month post which was not fun and then I had to take a 4 month break for tax season and then by that time when I started riding again it was a lot easier to get back to and exceed my pre Tx riding skills.
Hang in there and just go with the recovery flow.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2009 Posts: 22 Member | | Member
Joined: Apr 2009 Posts: 22 | Hello Ray,
I am in SATX. I go for my intitial consult tomrrow after a 2cm biopsy came back w/ SCC. I will fill you and others in more later.
Kenny
Dx: SCC lateral tongue April 09, Stage T1M0N0
PET scan clear April 09
Partial glossectomy April 09, no carcinoma present
IMRT started 7/9/09, finished 8/26/09
PEG inserted 7/30/09
PEG removed 9/25/09
ER Nurse
Keep the rubber side down....
| | | | | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | June 12th checkup i got the news that my PET was clear. ENT and radiation docs are extremely pleased. Not as pleased as me and my family of course.
I got the PEG removed the same day and have now joined the 'people with two navels' group. Did you hear the one about the man born with two belly buttons? He sent one to the naval reserve. I heard that joke years ago when i was a kid and never thought i would actually be living it. But now, when i show people, i always tell them that one is for the naval reserve. It breaks the tension because some people have a hard time talking about the big C if they haven't had it. I was one of those people.
I now make sure i call on anyone with a bad illness. Having been there you have an insight as to what to say and most important, what NOT to say! That's one of the great things about this forum. Those of you who are regular contributors are giving extreme moral support to those of us who have come here for answers.
Thanks for the answers, support and everything. I will be checking in regularly. And, if i see a post where i can contribute, I will.
I actually have a recovery question i'm going to post as soon as i submit this that i'm going to post in the appropriate forum.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I am glad things are going well for you. Congrats on the clear PET.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 |
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ray, Way to go. You never did tell me if you tested positive for HPV?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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