| | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Unbelievable!
Hang in there!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Jim,
guote ...you deserve all the positive support and kind words you're reading! We all have benefitted from your support, advice, humor and caring.
Hey what was said! thanks for welcoming me back and thanks MORE FOR REMIDIng me 2laughin tears beat crying tears Every Day!!
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
| | | | | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Jim,
quote ...you deserve all the positive support and kind words you're reading! We all have benefitted from your support, advice, humor and caring.
Ditto and yes what was said! thanks for welcoming me back and thanks MORE FOR REMINDIng me that laughin tears beat crying tears Every Day!!
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Jim,
Sorry I'm just reading this..I've been out of the loop for a little while. I'm sorry to hear you have to go through this again. I know you can do it!! I'll be thinking about you.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Next is the word from the Dr at Allegheny General in Pittsburgh as to if he can stent or have to lay what's inside outside by my body on the table. Your body gets shut down for this procedure. Then staple me back together and wheel me to Intensive care for a day or two. Hard to believe this is the 3rd time for this. I'm going to write a book titled, " The Survivor of Survivors "
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | WOW!!! What a book that would be. We could use some good reading material  Sorry, I've been out of the loop lately. Mom's back in the hospital. You hang in there and git'er'done. We'll be praying for smooth sailing all the way.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | After all the trouble we went thru to get the Scan on time, I have heard nothing. I called the Drs office in Pittsburgh to ask why and was told the rssults haven't shown yet in their fax. I called the hospital tha did the Scan and was transfered to 4 people and the last one tod me " I will fax it now" GRRRRRRRR Of course I had to have my say about job effieceny. I asked her just what in the world was your mind doing over a week ago when we did this and your were supposed to fax the results then?? The only answer I got was that The Dr at Allegheny General would have them in a few minutes now. Bust butts between me and the nurse at Allegheny so someone could sleep on the job. OH BOY
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Seems to be the exception rather than the norm lately to have someone pay attention to detail and get the job done.
I am so tired of babysitting people..repeating what I have so diligently tried to communicate in the first place...stressing out about getting things done in a timely manner only to have an idiot screw something up.
Sorry to vent and add to Jim's frustration...it has been a bad couple of weeks with this sort of thing in our lives as well.
Stopping now to try to be thankful for Bill's good health and all that is right with our lives.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Vent on mam, vent on. The medical profession can tee one off big time. This really is a first for me tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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