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i noticed a large bump on my tongue about a month ago. about the size of a pencil eraser and it is red. any how, this week i noticed quite a few more and they are now on the sides of my tongue. i do not have a sore throat nor is there pus on my tonsils. i feel like something is caught in the back of my throat. any advice


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Welcome to OCF. If you have a sore in your mouth that has not healed within 2 weeks then its time to go see a doctor. You can start with either your family doctor or dentist. If they think it could be possibly something serious they will send you to an oral surgeon or sometimes an ENT for a biopsy. Call for an appointment tomorrow.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Yes baby girl, listen to Christine and now me and move your butt to see a Dr as soon as you can push them if you have to but go.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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I knew I had seen you here before, Now that I checked your profile I am sure of it LOL Welcome back to our home. heck,, don't ipe your feet, just come on in. Hey and be sure to post whatever you find out will ya?


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Thanks I am worried but definitely going tomorrow they will just have to work me in. I will post whatever I find out usually my suspicions are right on target. I have a chairi one malformation it took 3 years for the doctors to find out what was wrong then and after 4 surgeries later I finally have no more pain or headaches and now this what next thanks for the advice


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just got back from dr. they are sending me for a biopsy. lymph nodes are swollen and suspicious spots are on my tongue. what do i expect next.


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You now must wait until the results come back to confirm cancer or not.

I'm not sure what they will take a biopsy of, your tongue bump and or your neck mass. I had what is called a FNA (Fine Needle Aspiration) of one swollen node in my neck. It was like a long shot and that was it. It took well over a week for the results to come back. Then they put me under and took a piece of my base of tongue and did the biopsy while I was asleep. My mouth was sore for a weekend.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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we'll i went to the doctor that was suspose to do the biopsy and he told me to gargle with benadryl and water and spray nasocort on it and rub vitamin e on there and call in a week and then he will consider doing the biopsy.


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He just might do as mine did,, take a few biopsies from different areas. I was glad he did that and the Drs that followed did the same. You will hurt after but it quits in a few days and really isn't that bad. I will be getting biopsies taked out of my esophagus Monday but will be sleeping thru them. Just go with the flow and you will be fine babygirl. Don't look at the needles either.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Go see another Dr. I went through almost what you are going through and it took me three months just to get someone to do something.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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I think I'd go back to the referring doctor and ask for another referral to a different doctor to get the biopsy done.

Did the doctor who declined to do the biopsy give you an explanation for what was going on w/ the bump on your tongue?



Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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lets see first of all my dr called to get me in today we'll the front desk lady said that the nurse would have to be the one to okay me to be worked in. the nurse at my drs office called and left a message for the nurse to return the call. i called 3 times and left 3 messages. then after lunch i called her back and got the front desk i told them i had not heard from her so finally after 4 hours of calling today i finally get to talk to the nurse who then tells me that the dr. no longer does biopsys and that he would probably have to refer me to another dr. but if i want to come in and have him look at it that it would be okay i decided i would let him look and see and then he could point me in the right direction. i get to the office and he rushes in there looks around asks me what i think is the problem and show him what my medical dr. thinks is suspicious so i do the bumps on the top are papillae (i think that is how you spell it) and the bumps on the side kinda look suspicious and that there is inflamation and i should use benadryl and water mixture and gargle and try to spray nasocort ( nose spray ) and use vitamin e on the site and let him know in a week if the inflammation has gone down if not then come in and he can biopsy it. how strange is that. I work for a dr. that is always rushing and doesnt take the time. but i feel like it my medical dr. felt like something was wrong that he wanted it done today . and this dr that is not taking his time to examine me just taking my money which it cost me 65.00 for him to tell me to use a 5.00 bottle of benadryl and 10.00 bottle of nose spray and 5.00 bottle of vitamin e and come back and then we can reexamine and biopsy . i feel like screaming . i am so fustrated with the medical system at times. My medical dr. diagnosed 2 members of my husbands family as something supicious and sent them to have their tests done both had cancer. one was my mother in law and the other was my husbands uncle. my medical dr. is a small town dr. doesnt go to hospitals just serves his community and does a heck of a job and the city dr.s only care about making their money.


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Can you ask your medical doctor get you another referral to a different ENT for the biopsy work?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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First off I'm a tad confused because they said he no longer does bios but then he said come back and I'll do a bio?

Secondly, you need to dump this guy and get to someone asap that is prepared to do a bio and is one that regularly deals with oral cancer.

We see far too many examples of delayed treatments because the early doctors just don't have the experience to recognize the potential for OC and it has been proven over and over again, early detection is the key to successful treatment.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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thanks , i agree with you david. Makes no sense to me. I did call my family dr. the one that referred me and he said that sometimes the doctors are now forced to do the least invasive first and he wants that biopsy done he made me an appointment with another ent dr. and i will be going on the 26th. so now its just wait and see. Worried about what will happen. I am trying not to get my family involved in this lord knows i don't want to worry them with this till i find out what it is. I have to small children and i am worried what it will do to them. especially since my oldest his dad really doesn't have anything to do with him and my other is 3 . How do some of you guys do it. How did you handle of this.


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babygirl,
I have two small children, 6 and 4. I just told them that mommy had a sore in her mouth that the Dr had to take out because it wasn't getting well on its own. The second time I had surgery My 6 year old understood better than my 4 year old because had his tonsils out. My 4 year old didn't really understand a whole lot, but enough that he is always telling people that I had surgery on my mouth. We have not used the C word with them and probably won't. They just know that mommy is going to have a hard time talking for a little bit. My 4 year is constantly coming to kiss me on the cheek to make me feel better. Just makes me want to cry.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Hi babygirl,

I hope you make it for a second opinion soon. It is so important to find this early and have a good doctor. Let us know how this turns out.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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BG,

I bet your kids will understand this more than some of us do. Kids are smart that way. Try not to get to worked up until we know more.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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It took my so called canker sore to show it's ugly head a couple of months. The first biospy showed inconclusive. I went back a few weeks later and I knew something was wrong because it had turned red and very sore. It came back cancer! When you go in for your results make sure you have someone there with you. Make sure you take notes and ask lots of questions. I hope you do not have to go on the journey that most of us have. But there is alot of support for you here if you need it. You are in my thoughts.


Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
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Sore throat, pain on the inside of the ear by the eutachion tube, started to get minor head aches, were my symptoms. I thought I had strep which is what the GP treated me for. Did not go away in 2 weeks, so he sent me for CT. Then to ENT that did the biopsy. I hope it is an alergy that is just causing the lumps. Good luck....


Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
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still waiting to go to the dr. on the 26th. sores still there and no longer can tell that there is something in my throat but have been having pain in my jaw . i have been gargling with the benadryl and water and spraying the nasocort and rubbing vitamin e on it. Still no change on the spot on my tongue. I am praying really hard. My mom has called everyday to see if their is any change in the spot and wants me to try something else each time that the dr. she works for says to try.


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dr. called today he is doing the biopsy tomorrow . Crossing my fingers


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Will be praying for you.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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You know you have all of mine babygirl. Plus waht ever else I can think of.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Good luck!!!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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At Dr office now waiting on tongue to get numb this crap hurts


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Okay mouth a little sore. Results come back Tuesday. He took one small piece and two large pieces. On pins and needles waiting.


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Hi Babygirl,

So happy to hear you had the biopsy done. I'm happy to hear that you will get the results from the biopsy so quickly. I will be waiting to hear what happens on Tuesday. I will be thinking of you, we know how hard the waiting is.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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thanks suzanne . i really appreciate everyones support.


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Awe do you really babygirl LOL You will forever have my support and prayers, I always had yours and I'm not returning the favor. iwant mine to be like yours,, Unsolicted, Good luck and keep smiling .


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: May 2009
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Glad that you had the biopsy. We all know that waiting is hard to do. I will be thinking of you and praying for you. I will check back Tuesday to see how you are doing. I am out of town right now. My big boy turns 7 tomorrow and we are celebrating it.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: May 2009
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Did you get your results back? I have been thinking of you and praying for you.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Don't keep me or us waing for the results,. I know you well enough to it will be posted as soon as it's feasible.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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still waiting for results i called the dr. yesterday and they still have not gotten the results from the lab. i called today and they have yet to return the phone call. my stomach is all in knots. and so many thoughts going thru my head . every time the phone rings at work i get a feeling in my gut . am i going crazy. I am wondering wy it is taking so long is something wrong or what.


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Hi Dionne- So sorry the results didnt come back today. You are in my prayers tonight- hope its nothing... love K


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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Still nothing? Thinking about you


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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Posts: 5,260
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Geez babygirl, if they don't call you tomorrow, give me the number and I will tell them to call you, Don't they know there are people from around the world waiting to hear? LOL Heck I luv ya too and want whats best for you


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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The nurse called today and said they got the results in waiting on Dr to come in and read them they are going to call after lunch.


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Geez babygirl did they call??


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Just wanted to let everyone know I got the results back it came back benign just inflamed lymphode tissue he is sending me to a oral surgeon to see about the inflamed tissue anyhow thanks for the support and prayers. I am so relieved ya'll have been great. You are all in my thoughts and prayers.


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babygirl,, you are a part of our family and if we didn't worry about you and pray for you, we should be adopted out to a monkey tribe. LOL Luv Ya lady


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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That is wonderful news!!! So happy for you.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jun 2007
Posts: 10,507
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Dionne, great news about your results. Congrats!!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
Great News!


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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