| Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | The 2001 valve I have is just a friction fit on the 15mm end of my trach; some of the other valves are made to go inside the various kinds of tubing and hardware that exists. I figured that if you are covering the trach as I was doing, you can just slip the valve on there. It has a place to attach a cord so you don't lose it if you cough or blow too hard!
If you download the Patient Handbook from the link I posted, it contains a number of examples of applications of the different valves.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Jexxie, So sorry you had to find this site. All the advice given was terrific. I agree with Amy, try to find a way to be there if you can before the procedure, not only will it mean a lot to her, it will help all of you. So many members here have been through what your mom is facing and they are here to tell you about it! Keep the faith!!
Amy--Was just thinking about your mom the other day, she was an incredible person, loved by all.
Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Listen to AMy,, she has been thru this and undersatnds how your mom and you all must feel. Her mom was very good at boosting others thru this.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | Jexxie, Keep your faith strong! My mother just had surgery on 3/31/09 for her fourth recurrence of this cancer and she is weak but doing great! The first three times were oral cancer and this last one was in a lymph node in her neck. She had a right neck dissection and will probably have to have some radiation - we're waiting to hear what the oncologist says. I will be honest and tell you that this is tough cancer to deal with, but this website has so many supportive people with tons of knowledge and experience so they can really help you. They are right - try calling the Amer. Cancer Society and the airlines to see if they can help with the cost of getting there. Being with them will make you and your family feel much better than your worrying and wondering. You all need to stick together now and help each other through this. I will be keeping you in my thoughts and prayers. You aren't alone in this. Take care and just take it a day at a time.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | |
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