| | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2008 Posts: 96 | Thank you all... Ron will start Erbitux on the 23rd. Depending on the result of the PET scan from the 16th he may also get Cisplatin. We were told he would have chemo weekly that could last months, I guess. He is already sleeping so much, I am worried about what the chemo will do to him. I will keep everyone updated on his progress. Lori
Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Lori,
I hope everything went ok today for you and Ron. I am thinking about you.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2008 Posts: 96 | Thanks Suzanne, His first Erbitux session went very well today. It was long, about 3 hours, but they do it very slowly the first time. The PET scan results were not so good. He doesn't have any distant mets, but the main cancer in the cheek is growing quickly (went from less than 1 cm. on April 9 to 5 cm. today). He also has active areas in the left neck and left trachea. There is a possibility that he may have a brain met. He will have an MRI soon. We talked briefly about adding Carboplatin and Taxol to further sessions, but the Dr. said that the benefit would probably not outweigh the side effects, and would do more harm than good. So we will stick with palliative Erbitux for now. We also got Fentanyl patches to add to the pain meds. He is just so exhausted all of the time. I just hope he can withstand the treatment. Will update again soon. Lori
Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Lori
Thinking of you and Ron. Ron and I always seem to be in the same spot in the road.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Lori,
I'm sorry to hear about the PET results. Just take it one day at time and use us here for support whenever you need to. Keep us posted.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Lori- Sending prayers your way for strength and hope.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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