| | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Judy, I am so sorry. I will keep you and your family in my thoughts and prayers.
Your fellow Hoosier,
Cheryl
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Welcome to the group Judy. I will keep you, you husband, and your family in my prayers. I pray for your strength and your husband's peace.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Judy,
I too will keep you, your husband, and your family in my prayers.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Judy
any questions don't be afraid to ask or pm me if you prefer.i pray for your strength and his peace
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I knew Liz would step up to bat for you Judy. She's been thru it and is very intelligent with her words.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 22 Member | | Member
Joined: Apr 2009 Posts: 22 | As a nurse and an oral cancer patient your journey has touched me but it also scares me as to what one day I may face. You will be in my prayers for without those I could not even have survived the surgery and recovery to return to work 7 weeks after my 12 hours or surgery and 4 days in ICU.
T2N1M0 Stage IV SSC right lower alveolar ridge with fibula free flap, Peg, trach, selective neck dissection,one node positive. No Chemo or radiation.Surgery 3/08.Cancer free for 2 years as of March 13.
Hope is a good thing, maybe the best of things and no good thing ever dies.
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hello, Judy -
You are in my prayers.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Judy....I don't come to the Forum often these days, but I am moved to add my name to those who wish you well and promise prayers for your and your husband's strength and comfort in the coming days.
Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Apr 2009 Posts: 9 Member | | OP Member
Joined: Apr 2009 Posts: 9 | It is with unbelievable sadness that I write that my husband, Russ, passed from this earth early Friday morning. The hospice center had called me Thursday morning to tell me to 'get there.' We spent the day with many friends and relatives, and he was somewhat aware, and knew that they were all there. Late that night, everyone had left the room, and around 2:00 a.m. he very quietly left us. It was peaceful and without fear. From the look in his eyes, he had seen someone coming for him, and he just relaxed, smiled just a bit, and just....left. So he is at peace, and without pain, and is now in some very good company...probably fishing with my dad by now, or playing guitar with his brother.
I had been praying for a peaceful transition for him, as had all of our family and friends, and I am so grateful that our prayers were answered.
For all of you kind folks out there who have given me so many words of comfort and support - thank you from the very depths of my heart.
Wife of Russ, 51, who was diagnosed with Stage IV 4cm tumor in mouth floor, jawbone, and tongue in June, 2008. Had aggressive chemo & radiation. Tried & failed to have a resection in March, 2009. Was in hospice care from March 13 until he left this earth on April 10, 2009.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Judy, it is with great pain but still glad it's over for Russ's suffering and the pain it caused you. He is in a much better world than our physical one and if you are lucky, you will meet up with Russ someday in the future. You and your family are in my prayers and get the best wishes and prayers possible.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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