Hello All.
I have myself in a tizzy. I walked into my parents room earlier and was immediately assaulted by "that" smell! I haven't smelled it for so long, not since mom completed her tx's. I feel like I am coming undone, the fear that is boilng up inside is overwhelming. I asked her when she sees her RO next and she said May. I am so shook up, I can't think straight. She has been going for her check ups and thus far has faired well. This smell...do you know what I am talking about? What should I do? I don't want to freak her out but I think the RO needs to be contacted. I can't believe how out of control I feel inside. I haven't been this frightened in a while--well, not since November when Jackie had her tonsils removed and I knew that they would be biopsied. or when Jerry, yes, our Jerry, used the veloscope on me, I don't think I have ever been so quiet!
Any advice would be so welcome. Thanks.
Donna

Maybe its nothing, but maybe you have sensed something. Why don't you call her R.O. and suggest that your Mom's appointment needs to be rescheduled. Then you can just present this to your Mom as a "date change". Can't hurt and would definitely put your mind at rest.

I don't know the smell you are referring to, but maybe some other caregivers do. I do however believe we need to trust our "gut instincts".

Good luck Donna. Let us know.

Donna if i close my eyes that smell is there!!!i will never forget it and like you if it reached my nose again i would know straight away.May is a while away sweetie ,too long to wind yourself up.

love liz

I will call or email him today. I didn't sleep much last night worrying about it. As we all know, worrying is a waste of time if we don't do something about it.
I'm wondering too if it could be a possibility of the new MLD tx's she is receiving? This therapist has been working on her aggressively and moving all that around-maybe that caused it?
Going to check on mom before I go into work.
Liz,
I hope today goes well and someone reports some info on Paul.
Love,
Donna

Oh! and thanks for being here!!

Can you tell me more about the odor you are describing and what is causing it?

To be absolutely ruthless the smell is dead rotting flesh.The tissue where the hole appears dies and becomes liquid,this creates a a brown fetid discharge.Its very distressing and very hard to treat.

I smelled the same thing last night while at my mothers house. It was the same smell that existed prior to surgery. They said that they thought that there was another tumor at the base of her tongue and the smell confirmed it for me.

There are people that say they can smell cancer and one was a preacher we had one time. AS nasty as he looked, it might have been his body after all it was under his nose. What's bad to me is I can smell it too once in awhile but it's me I sense.

In the United Kingdom they have trained dogs to sniff out cancer .Its an amazing thing to watch,but the odour i was talking about is associated with tumours that have actually burst through the skin creating fistulas that leak this very unpleasant smelling discharge.