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Charm2017 #91500 03-10-2009 01:23 AM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Soda water as we call it here in blighty is a good old ocf remedy.It helps to cut through the mucous and slime and when you drop a teaspoon of salt into it it helps the healing process without drying the mouth out to much.Rob swore by it,and used it about 4 times a day.when he couldn't have a beer in the evening because it burn't his mouth too much,he mixed soda water with white wine.(trust a drinker to adapt!!!).

Its unfortunate Suzanne that you are setting your benchmark on previous recoveries.I don't want to sound harsh sweetie but i think thats a little unrealsitic all things considered.Your body has been on the equivilant of a marine training assault course,and recovery is always going to belonger and harder the more punishment you have to endure.

You really do need to step back and relax and take time out.is there any chance that your medication could need changing.Sometimes the meds make you feel worse than the disease.

Getting married is an emotional time for everybody and for someone who has been through what you have, it will be trebally so.Let other people do as much as they can to give you a break,while you concentrate on getting well.Plenty of nutrition plenty of sleep perhaps something to help lift you mood.

take care honey you will make it down the aisle in style.

love liz

Last edited by Cookey; 03-10-2009 01:24 AM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #91508 03-10-2009 04:27 AM
Joined: Dec 2008
Posts: 1,004
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You are all so kind. Charm and Liz..I am going to try soda water today. I've never heard that before and I'm always willing to try something new. I did call my doctor yesterday and they should be calling me to make an appointment soon. Liz, you are right. I think I am being a bit unrealistic. I think sometimes I'm still denial. Like I don't want to admit what the surgery was for and I should be better asap. I guess I need to work on my patience.

EzJim...lol I don't picture you as a dirty old man!!! I love all hugs!! Claudia...thank you...you are so sweet.

Dianne...you're right....I do love my man!! It's a good thing since we're tying the knot!!

Love, Suzanne


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Charm2017 #91510 03-10-2009 04:37 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I think I am going to get some Seltzer water today and try it. If it helps this mouth, I will place a star on both sides of Charms name.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #91533 03-10-2009 09:23 AM
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
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Joined: Dec 2008
Posts: 1,004
Oooo...good idea. Charm and Liz will both gets stars!!


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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