| | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | What sort of troubles did she have with her PEG? I have had three, and the second one of a piece of s*** (It was poorly designed and too small in inner diameter, so it was constantly getting clogged), but I wouldn't have known that if I hadn't had the first one. When I needed a third one, I went back to the Doc who had done the first one.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Again you must push the hydration and calories in her anyway you can.
Water and Carnation Instant Breakfast VHC were my best friends for a very long time.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 23 Member | | Member
Joined: Mar 2009 Posts: 23 | She had the feeding tube thru her nose, which was a pain, but she had really bad diarehha, it was like it went right thru her. She had a gravity bag, and seemed very fast....
She is just drinking water, and getting down the essential pills...not much other than that. She had some thrush but that has cleared up. | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | If she's having diarrhea, it's possible that the food is going in too fast. I had that problem, with some sweating first, and using a food pump set at a very low rate fixed it.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Mar 2009 Posts: 23 Member | | Member
Joined: Mar 2009 Posts: 23 | welcome....caregiver here but this website is wonderful!!!!! The people here are great.....my mom and i are staying in iowa city now a few blocks from hospital...we are seeing dr about getting a peg tube put in...she has lost 16 lbs in the past three weeks....14 treatments to go...my thoughts are wtih you NANCY | | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Thank you so much for your explanation. Helps me to better know what to expect. Hope you are doing well.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Hey there, Iowagirl. Thank you for the good thoughts you're passing my way. I am returning the same for you and your mom as she goes through her remaining treatments. Take care.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Cookey, I spoke with my Mom last night. She has an appointment w/the surgeon this morning and then to the hospital for some pre-surgery stuff. She told me they will be doing a lymphectomy and a right radical neck dissection. In your explanation of what a neck dissection entailed you mentioned that in a radical one, they removed the jugular vein... how do they do that I thought that was something you had to have??? Don't mean to sound stupid but....
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Honey thats only a maybe not a definate,it depends on the tumour positon and whether the jugular vein is under threat from invasion or erosion.I was surprised when i was told this as i thought OMG but apparently its quite standard. neck dissection this link will give you all the information you need and the answer to your question. love liz
Last edited by Cookey; 03-19-2009 10:46 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Liz, thank you very much for that link. It answered a lot of my questions. My mom counts on the dr. to explain to her what he's going to do. She has no computer to look all of this up, sometimes I think that may be for the better. I wrestle with whether to tell her what I'm learning or not. She wants to know what to expect so I can't wait to find out tonight what the dr. told her. I'm trying to think of things to do with her to help take her mind off of the wait before surgery. Thanks again for helping me understand it better - I really appreciate it. Take care of you - Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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