| | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Kelley,
I mainly use 10mg (blue) Valiums for the spasms and Codeine, occasionally, if the pain is too great. I don't take more than 30 codiene a year and less then 200 Valium in a year. I am prescibed to take 1 Valium a day for sleep, but I don't always.
I can't take Vicodin because of my liver issues.
They did offer Botox as an alternative but I am saving that option if it gets more unmanageable.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jan 2004 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2004 Posts: 64 | Gary,
Who would be the most likely doctor that would do the injections? I just spoke with the pain management people and they only do steroid injections. Jim, I asked my medical oncologist for ultracet last visit which I believe is the most mild narcotic and he refused. He said if I had cancer...but I dont. I feel I am being undertreated. I'm not narcotic seeking, I just want to be able to function. BTW, glad to see you up and posting. I dont post often, but have been following your progress. You've got an amazing attitude and are truly an inspiration!
SCC tonsil(left) with contralateral mets. Modified right neck disection August, 2002. 33 rads(62 gy)both sides of neck and 3 cycles cisplatin completed October 25, 2002. 34 yo at time of diagnosis
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I keep looking for that LITE at the end of the tunnel but it keeps backing further away. LOL Gonna have to get one of my guns and stop it. Got a call from the director of the Cancer center today and he wants another PSA test real soon. Geez, they hardly let one heal and go after another.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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