| | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) |  Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Debbie,
Thank you. I've been trying to remember what my speech therapist called that before I felt like I could respond.
It was about 16 months after treatment had ended when he mentioned that I still had some lymphedema. Under my chin was thick, hard, and enlarged. I had just thought it was permanent scar tissue left from surgery and/or radiation. It soon after that started to go away, maybe helped by the exercises my therapist had me doing. Anyway, I'm 2 years post Tx now and it's completely gone.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Yea my face was swollen too...almost like the elephant man. My head was very lopsided. It all went down then the radiation made me swell again. I am getting better every day since txs ended. It's such a slow process.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | I still have some lymphedema going on. I had a virus a week ago and it got worse with that for a few days so I had to massage it out like crazy. Also, I had an allergic reaction to a medication and that made my neck swell up a little bit more than usual. I'm pretty sure I'll be dealing with it for quite some time!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Hi Gary and everyone else,
my boyfriend is 14 weeks after his last radiotherapy session, he had a modified radical neck dissection before that.
He swells up on the jaw line as well. Sometimes he looks like a hamster. We asked the consultants in hopsital and they said it is just the lymph trying to find a new path after the other lumph nodes were removed. Sometimes the lymph styas stuck there. They have said they will send him for some special massages to stimulate the circulation of the lymph, but at the moment he is still too sore. Apparently it does sort itself out eventually, the lymph adapts and finds a new way to flow, it just needs a little help sometimes.
I hope this helps a little?
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | That's what my nurse practicioner has said as well all the symptoms I am experiencing are being directly caused by fluid and lack of motion...I start January 12 can hardly wait and again hope I am not placing too much into the massage but I have great expections for it releaving some of my post surgery symptoms...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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