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#8664 10-25-2006 07:30 AM
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After reading another post about color of Ribbon. I was wondering Is there one for OCF?

If there is NO Symbol for OCF, maybe it is time to come up with one. Something that will stand out. It does not have to be a ribbon.

Maybe you all have talked about this long ago. I just thought I would throw it out there to see what is what on the idea.

Thanks,
take care
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8665 10-25-2006 10:04 AM
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OK ! Feel real stupid ! I re-read the post. Is the Colors for OCF Ribbon BURGANDY & CREAM ?

I guess my eye sight must be going a long with my brain.

take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8666 10-25-2006 10:38 AM
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The Oral Cancer Foundation does not have a ribbon color. SPOHNC came up with that one several years ago, and I have already posted my opinions here several times about ribbons and the thousands of unknown varieties that already existed out there. So that ribbon color combination was cooked up by Nancy at their organization, and not OCF. They call it an oral cancer ribbion (not one dedicated to their organization), but I don't know of any head and neck or oral cancer organizations that have adopted her idea. Likek I said in previous posts there are over 2700 disease, cause etc. registed ribbon colors out there, and I think that putting any effort into this idea is a waste of time and money. No one is going to know what it is, and the impact of wearing it will be nil.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#8667 10-27-2006 05:02 AM
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Thanks Brian,

Now I do not feel so stupid !! Yes, I can understand your point of the Ribbon.

I know that people love wearing pins that Represent things. They wear them like charms. Just wanted to throw the idea out there.

If I dream up a good one for you to consider I will let you know. OK? That is how things get started and catch on. Never say Never

take care...
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8668 10-27-2006 06:27 AM
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Can I just say that as a breast cancer survivor the whole pink ribbon thing drives me crazy? It is incredibly commercialized, to the point of meaninglessness, and was not dreamed up by a nonprofit agency related to breast cancer but by a cosmetics manufacturer (I think it was L'Oreal) to publicize that when you bought their product they gave some of the profits to breast cancer research. It is STILL being used that way--to sell products--as much or more than to get money that supports programs related to breast cancer. They even have breast cancer pink and white M&Ms this year! Gag me!

And don't even get me started on the annoying symbolism of the color--a color that is normally associated with infant girls--to recognize the courage of women who are strong adults fighting for their lives against a nasty diease.

OK. I'm done ranting. Sorry.


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#8669 10-27-2006 07:35 AM
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Gee,

Had no idea this was not a good subject.. or idea. :rolleyes:

I guess I will not bring this up again. eek

take care
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8670 10-27-2006 07:39 AM
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Sorry, Diane, that rant of mine above really was about the commercialism of the pink ribbon for breast cancer awareness. It has nothing to do with whether we could come up with something for this site (which would never BE commercially exploited the same way since oral cancer is so much more rare).

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#8671 10-27-2006 07:44 AM
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Nelie,

It was just an idea I had for this wonderful site is all. I do feel this site is going to go far and be reconized world wide.

take care
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8672 10-27-2006 02:33 PM
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Don't quit putting out your ideas Diane... we need to create awareness, and everything is open to consideration at this point. Wrist bands and ribbons have been done to death. If we do something we need to really be different and noticible. I've worked with lots of ad agencies in my lifetime. You sit down and brainstorm with 20 people and you come up with 50 ideas... most end up in the round file and are tossed. But eventually a brainstorm occurs (like the yellow wrist bands) and it's a killer idea. If you don't toss them out there, we will miss the one gem in the mix. If you don't want to float them in public, and suffer the ravages of everyone's opinion, send them to me by email. I am open to hearing it all. If I think it's been overdone or whatever, I'lll say so. But I can't dream up everything... there are lots of creative people out there.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#8673 10-27-2006 03:11 PM
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Ok, Brian I will not throw in the towel...

No, I am not thin skinned, just did not know the history on this stuff. I beleive there is something that we can come up with that will stand out and you will be proud of.

Thanks,
Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8674 10-27-2006 11:03 PM
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Brian,

I did come up with something. I will have to send it to you email.

It is just an idea, but thought you could take it and go from there.. I got the idea from everyone here talking about their Journey.

I am sure a professenal could do better. I could not sleep until I got something down on paper. It was bugging me.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8675 10-28-2006 01:20 AM
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Diane and Brian,

At the top of this page and in the center of the home page is a round OCF LOGO. I have a lapel pin that I wear in the office everyday on my dental jacket that looks just like that. I believe I got it when I joined the OCF. I don't see it in the store, but I think it was part of my professional membership package. I do see that a "cloisonn


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
#8676 10-29-2006 09:20 AM
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I think what Diane is speaking of is a widget, gaget, attention getter. Like the ribbons and bracelets have been.

By the way anyone who wants one of our OCF pins to wear, just drop me an eamil and I'll get one out to you. We don't sell them in the store, guess we should, but they do go out to everyone that becomes a member. But if that is a price that is too high for you, or you have a group that needs them, just let me know. We run them every few months by the thousand, and I am happy to have you all wear one.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#8677 10-30-2006 03:06 AM
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Hey everyone,

I got my OCF pin a long time ago and I still wear it. It's a little small, so that makes people lean in to look at it on my coat and ask me "what is that?" That's fine with me because then I can explain that I am a member of the OCF. That gets a short conversation going.

If you don't have one, get one! The enameled version is very attractive and it does bring an awareness of who we are, what we read and talk about everyday, and what we're trying to do.

March on!


Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
#8678 10-31-2006 05:07 AM
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Hi Everyone,

I sent a design idea to Brian. I was trying to figure out how to explain what I sent to you all.

So here it goes. I sent a circle with a hiker inside all done in Burgundy, then wrote ORAL CANCER at top of circle FOUNDATION at bottom. THE on side (left) JOURNEY on side (right) All done in white print. The circle is 0 for oral and the hiker is for journey.

I also sent a few other ideas using same design but altered it. I am trying to come up with another. I am using the JOURNEY as the theme at this time. I got the idea from all of us going through this journey.

The design could be used for many things. Shirts, hats, pins, key chain, pendant, charm, stationary etc. I am sure we could come up with a few more ideas.

OK, just wanted to share this with you all, and get your feed back for Brian.

Take care...
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8679 11-01-2006 06:08 AM
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OK, guess I was on wrong track or Journey, Ha ha!! Not trying to redo the OCF logo.

So need to come up with idea that is not a ribbon, or a bracelet.

I keep coming back to pins, key chains, & charms, book markers. Oh! how about a mouse pad? Or a check book cover?

Maybe someone else has an idea......?? chime in.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8680 11-01-2006 01:00 PM
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OK, my final offer.... ha ha!!

How about a watch? Maybe TIMEX would get behind this one...??

I am trying to think of something that would be out in the open & people would see. Just like Lisa's pin and people ask about.

Back to drawing board.......
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8681 11-14-2006 01:07 PM
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I am still thinking!! :rolleyes:

When I think of the watch idea, I think of things like it is TIME FOR ORAL CHECK, ORAL CHECK TIME. What ever??

The face could have something special, or just the logo of OCF.

No matter what we come up with, it has to be something that a woman would buy. Sorry Guys, it is the truth. Women are the ones that buy most of the things like this. I think anyway. If I am wrong then I apologize to you all. eek

Take Care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8682 11-14-2006 06:27 PM
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Diane, if you hadn't had your jugular vain removed, no telling what you might come up with laugh It's fun reading your ideas! Keep thinking- Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#8683 11-15-2006 05:47 AM
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Ha ha That is funny!
You may be right lack of oxygen to brain ya know!

I was just hoping we could come up with an idea for OCF to use that would stand out like the ribbons and bracelets did.

So I keep trying.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8684 11-15-2006 10:07 AM
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Diane, I will private email you with a picture of what I will describe. Rings like the OCF logo pictured above but without the center. Polished silver with black engraving. About the size of a nickle. Keep the Oral Cancer Foundation enscribed around the edge, and on the flip side add a additional engraved word.
Words to consider:
Survivor, Remember, Spirit, Hope, Strength, Live, Health.....
Mike received this type of ring inside greeting cards that our friends sent every week during his treatment time. Each card contained a ring with a new word appropriate to his point in treatment. He started to put them on his keychain and soon had too many. He picked out some for me that he thought appropriate and bought me a silver necklace to wear them on. Then he gave a few to each of our sons. They carry them on their keychains. It became a symbol of sorts, like we are united and together in this fight.
When I get home from work I will send the picture.


Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
#8685 11-15-2006 03:15 PM
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That sounds neat-like a "Band of Brothers and Sisters" symbol. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#8686 11-16-2006 03:48 PM
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MikeG,

I received the photos you sent. Interesting!! You should send those on to Brian and see what he thinks. Send the above description too. I enjoyed the meaning behind it all.

What a neat idea. So simple but meaningful.

Take Care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#8687 11-17-2006 11:47 AM
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Diane, I'm glad you got the pictures. I will foward them to Brian.
The necklace I wear the rings on get a lot of attention. People will comment and ask about them. The words on mine that Mike gave me were
HOPE,PATIENCE,DREAM,SERENITY. They would really be great with the Oral Cancer Foundation on the flip side. I wind up explaining about my husband's cancer anyway.


Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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